Sophie's father, Art

I did.

It's really rough.

Yeah, I mean, I think it's just there's a little bit of everything. She can, you know, she can, oh, what's the right word? I think she can be defiant and she can kind of be in pain. She can be aggressive. I mean, you can't control that. You know, she has quite a medical history at Children's Seattle.

She gets a lot of treatment there and has had multiple surgeries and different scans and everything. So I think what I would say to you is it's a very rare medical condition. And I think it presents itself in many ways. Sure.

Um, once or twice a year.

Yes, one time when I was... out visiting my daughter and two granddaughters. My daughter ran an errand and I watched the girls.

Had an episode and it's a sad thing when you have that.

Well, she can become a little defiant. She can kind of freeze. She can be in tremendous pain because if you can imagine when you have when your body is freezing up, she can sometimes go into dystonia, which is extended cramping. So if you can imagine the worst Charlie horse and not being able to get out of that Charlie horse, then that's the kind of pain that she endures at times.