Episode 1: Living with Mesothelioma with Leonie Metcalfe

We share Leonie’s path from lifelong nurse to mesothelioma patient. A veteran nurse who spent 52 years caring for others found herself on the other side of the hospital bed with a diagnosis she had barely heard of: mesothelioma. Leonie shares her journey five years on since she was given a six-to-twelve-month prognosis, and what it takes to have to navigate the ACC process and get recognition when the system feels stacked against you.The science of asbestos-related disease, and the reality of treatment, advocacy, and support in New Zealand. We also spotlight the Mesothelioma Support and Asbestos Awareness (MSAA) Trust’s practical help for patients, carers, and families.•  Mesothelioma explained, symptoms, latency, prognosis•  Treatment options: chemo & immunotherapy•  Navigating ACC, proving exposure outside trades•  Gender gaps in claims and access•  Building the MSAA Trust and support groups•  Coffee mornings and national peer networks•  Asbestos exposure prevention through asbestos awareness, especially       during refurbishment projects•  Comparisons with Australia, UK, and the US.•  Calls for a national exposure register.•  Practical self-advocacy tips and family supportAll the links for the MSAA Trust are below: the website and the Facebook page.If you are interested in supporting the MSAA Trust, please go to the website, www.msaatrust.org.nz. If you are interested in donating, then we would love that. If you know anybody who's been impacted by asbestos-related disease or silicosis, please do connect them to us. Thank you.Website: www.msaatrust.org.nzEmail: [email protected]: https://www.facebook.com/msaatrustThank you for listening.Don't forget to subscribe for future podcasts.More Information is available at www.asbestostillkills.comContact us via email at: [email protected] Asbestos Still Kills ® Podcast is sponsored by:Asbestos Management Consultants Ltd https://asbestosmanagementconsultants.co.nz/The Environmental Innovation Centre https://www.environmental-innovation.nz/Thank you for listening. Don't forget to subscribe for future podcasts. More Information is available at www.asbestostillkills.com Contact us via email at: [email protected]

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