Resources

There are many resources available for family carergivers. Sometimes it's hard to know just where to look. We want to provide access to as many resources as we can, and will keep this page upadted as we learn of nedw ones. If you know of some you want to share please  write to us via our website www.caregivercompanion.libsyn.com "Loving Support and Caring for the Cancer Patient" by Stan Goldberg Fran's Place for Cancer Counseling  www.centerforcancercounseling.org Rosalyn Carter Caregiver Institute www.rosalyncarter.org Family Caregiver Alliance www.caregiver.org National Cancer Institute  www.cancer.gov  1-800-4-CANCER American Cancer Society www.cancer.org 1-800-ACS-2345 Cancer Care www.cancercare.org  1-800-813-HOPE Caregiver Action Network www.caregiveraction.org 1-202-772-5050 In Season 2 Episode 11 ...John and Fran talked about Fran's book "Losing Mom". You can find it on Amazon here.... https://www.amazon.com/Losing-Mom-familys-transition-perseverance/dp/1460928091/ref=sr_1_1?crid=NDYIRSP7DZ22&dib=eyJ2IjoiMSJ9.oNq_-ApTLn7QnTJ3-OfYOqRoXar_AxJLoe7AIZ5AOYnGjHj071QN20LucGBJIEps.2yH9UuTHuPowrCz-RdVvXSrvXklOcaczg7OhlIRkDhY&dib_tag=se&keywords=frances+baumgarten&qid=1753209569&s=books&sprefix=frances+baumgarten%2Cstripbooks%2C468&sr=1-1 Season 2 Episode 10 A Monster Calls Fran and John spoke with Jenny McClintock, an educator and child of a cancer patient. Her drama class performed the play "A Monster Calls" about a 13 year old facing his mother's terminal illness. Below is a link to the performance When A Monster Calls   Season 2 Episode 9- Caregiving on PBS John and Fran talked about the Caregiving Documentary on PBS, and wellbeings.org. Below are some links to these organizations https://wellbeings.org/series/caregiving/ https://wellbeings.org/from-one-caregiver-to-another/ https://www.pbs.org/show/caregiving/ Season 2 Episode 7- Clinical Trials Dr Wong referred to a few organizations that can be helpful in learning about clinical trials. We want to share those sites with you   National Cancer Institue (NCI)   www.cancer.gov American Society of Clinical Oncology  www.asco.org SWOG Cancer Research Network www.SWOG.org European Society of Clinical Oncology  www.esmo.org FDA www.clinicaltrials.gov National Comprehensive Cancer Network https://www.nccn.org/patientresources/patient-resources/patient-webinars/patient-webinar--clinical-trials John and Fran talked about journaling in Season 2, Episode 1. Here is the book John is writing to his grandkids https://a.co/d/eDDax5j In our discussion with Professor Yang about handling medications, she mentioned the following website to refer for medication handling information https://oralchemoedsheets.com/index.php/sheet-library   In Episode 12...Caring for Your Child, Kristen mentioned Gold Rush Cure, a non profit advocating for children with cancer. Their mission is to provide hope and encouragement to children fighting cancer. Their website is www.goldrushcure.org And... Sage's latest song "Cold Country Woman" is here!  CCW on Spotify CCW on Apple n Episode 8.... Nutrition, we spoke with Certified Dietitian Toni Marinucci. To get more information on nutrtion, diet and healthy eating , go to Toni's webiste www.tipswithtoni.com or check out her instagram page. https://www.instagram.com/tips_with_toni?igsh=ZDZzaGhqMzg2bjE0   In Episode 7...Music Therapy  Dr. Ravaglioli referred to the American Music Therapy Association as a reource. The website link is www.musictherapy.org  Dr. Ravaglioli's Music Therapy Practice can be found at www.raquelchristinemusic.com She can also be reached through her email [email protected]   In Episode 6... Caregiver as Collaborator, Emily suggested creating a binder or some means to keep and record important information. The link below is an example of the kinds of templates that are available to caregivers. This is just one example of many, but can give you an idea of what is available.  https://www.etsy.com/listing/1360870027/caregiver-planner-home-aide-tracker?ref=share_v4_lx Some interesting recent articles on Caregiving NY Times Article on Caregiving NPR Article on Black Men Caregivers Uber offers Help to Caregivers Here are some recent books on caregiving to check out https://www.nytimes.com/2024/08/19/well/family/books-caregivers.html?unlocked_article_code=1.F04.eLoi.jOJRLLMUQm22&smid=em-share     Another interesting article on caregiving compexities for older unmarried couples        

There are no comments yet.

Please log in to write the first comment.