The Role of Personal Stories in Research

Unlock the power of digital storytelling in research with our guest, Sara Pot, a parent partner with CanChild's Family Engagement in Research Program with McMaster University. Discover how storytelling fosters trust, empathy, and meaningful partnerships between researchers and those with lived and living experience. Sara offers an insider's perspective on the integration of digital storytelling into an asynchronous curriculum for researchers in maternal and pediatric health, making the learning experience both engaging and deeply personal.Learn how our innovative approach turned digital stories from supplementary materials into cornerstone content around which entire courses are built. By featuring authentic, personal narratives alongside academic readings and reflective interviews, Sara and her team have created a learning environment that honours the lived experiences of patients and families. Sara discusses how these stories, coupled with thoughtful reflection questions, provide a rich context for learners to connect personally and draw meaningful insights.The journey of digital storytelling also involves navigating the delicate balance between sharing personal stories and ensuring the welfare of storytellers. Sara emphasizes the critical importance of informed consent and the empowering experience of virtual screenings. Hear about the profound moments and ethical considerations that come with storytelling. Join us for an enlightening conversation on the significant impact of digital storytelling in research and beyond.Other Links MentionedIncreasing capacity for Maternal and Paediatric Clinical Trials (IMPaCT) Rise Learning Platform Mike Lang’s paper - How to Meaningully Engage with Patient StoriesLooking Back video with Mike Lang & Kristy WolfeAbout Our GuestSara Pot is a parent of four, including two medically fragile teens who require complex care specific to their diagnosed disabilities. She works for CanChild, a research center focused on pediatric disability housed within McMaster University in Hamilton, Ontario, as an educator and facilitator focused on developing patient and family engagement. Hosted on Acast. See acast.com/privacy for more information.

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