Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse

Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 

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