Andrea Dunlop
๐ค SpeakerAppearances Over Time
Podcast Appearances
And so they continue this behavior into the abuse.
And so, yeah, that one-upsmanship is something that you see a lot.
And it's with Colin and again, same thing with Maya.
There's a lot of this chatter about their child being, our season five case as well, the Sophie Herman case, their child being the most rare and the most serious case of this that's ever been recorded, which I think is just something that like a normal parent doesn't want their child to have the worst version of this.
But this is not a normal parent.
This is a parent.
There's this
always leaning into this drama, right?
This drama of having the rarest case, the most severe case, the case that is baffling all of these doctors.
And that's where they can sometimes really play into a susceptible doctor's ego because they're saying like, oh, you have this zebra, you have the most rare case, and they're going to write studies about it.
And there's going to be a medical breakthrough because of my kid, right?
And that's really about the parent.
That's really about the parent's ego and them sort of wanting the attention of having this super rare case that people are going to write papers about and that kind of thing.
It's a real concern, certainly with Lisa McDaniel being so involved in the NMO community.
And she talked about her son donating samples to their biorepository, which we do believe happened.
Sophie Hartman, again, that was her daughter, allegedly had AHC, which is alternating hemiplegia of childhood.
Again, I don't believe that diagnosis is accurate because I read a sworn affidavit from a neurologist that was not the diagnosis.
She was taking her to the specialty clinic at Duke Hospital.
And yeah, there is a real concern about polluting the science with these rare diseases, because if you have as it's exactly as you said, if you have a very small sample size, again, most people, even in these disease communities, are not going to be abusers.
But I think rare disease communities and studies and doctors who treat those rare diseases are such targets for these abusers that I think many of them do find their way into these sample sizes.