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Anne Rabbitte

👤 Speaker
120 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So what's happening is the drugs group are meeting this Wednesday, is my understanding.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I don't know whether Frederick Ataxi or Sky Clara's drug is part of the discussion.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

They don't publish what drugs are being discussed.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But what we do know is there can be one drug, there could be three drugs, there could be six drugs, Clare.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

How often does that group meet?

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

They meet every quarter.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So we won't have another meeting for another 100 days after this.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

It'll be next September when we have another drugs meeting on this.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And that is the frustration and that is the worry for all of the families that there's another 100 days.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

What I do know is that further information was sought by the drugs group, which was really positive some time back.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And Biogen has submitted that further information.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

That's the company that makes it, that makes it here in Cork.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

It's an Irish med drug and we export it to a lot of countries that have already approved this drug.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But it's important to say the information went back in on the 27th of May, the further information.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Now, I don't know whether that further information has been assessed.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Has it been scrutinised?

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Has it been absolutely analysed to the fact that it is on the agenda this Wednesday?

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I would love if it was, to be quite honest with you.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I would love if all those questions were answered and we were now getting to the stage that there would be a decision made that would be put to the senior management.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I'm hearing nothing.

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