Annie Lowrey
👤 PersonAppearances Over Time
Podcast Appearances
I'd occasionally gotten itchy when I had bug bites or something, but I wasn't a person who was an itchy person. I didn't have, you know, childhood eczema or any of those conditions. So I was thrilled to finally get a diagnosis. And they trialed this drug, Ursadiol, which has really changed PBC treatment in me.
I'd occasionally gotten itchy when I had bug bites or something, but I wasn't a person who was an itchy person. I didn't have, you know, childhood eczema or any of those conditions. So I was thrilled to finally get a diagnosis. And they trialed this drug, Ursadiol, which has really changed PBC treatment in me.
And it was only a year or 18 months later that they kind of said, look, like, you know, your organs don't seem to be responding in the way that we would love for them to respond that we're seeing in your blood work. So we're going to try additional medications.
And it was only a year or 18 months later that they kind of said, look, like, you know, your organs don't seem to be responding in the way that we would love for them to respond that we're seeing in your blood work. So we're going to try additional medications.
And it was only a year or 18 months later that they kind of said, look, like, you know, your organs don't seem to be responding in the way that we would love for them to respond that we're seeing in your blood work. So we're going to try additional medications.
And that was actually the moment that I got a little bit spooked because they didn't quite say to me, look, there's only one treatment and the treatment doesn't work on you. It was kind of, you know, oh, well, we'll try other things. We'll try other things. We don't know the course of your disease.
And that was actually the moment that I got a little bit spooked because they didn't quite say to me, look, there's only one treatment and the treatment doesn't work on you. It was kind of, you know, oh, well, we'll try other things. We'll try other things. We don't know the course of your disease.
And that was actually the moment that I got a little bit spooked because they didn't quite say to me, look, there's only one treatment and the treatment doesn't work on you. It was kind of, you know, oh, well, we'll try other things. We'll try other things. We don't know the course of your disease.
And I think that it was meaningful for me personally to find out that I was sick while I was having my kids. And certainly I don't think you need to have children to feel part of the tremendous fabric of humanity at all. But at least for me, it did really remind me of that. Certainly reminded me of my own mortality experience.
And I think that it was meaningful for me personally to find out that I was sick while I was having my kids. And certainly I don't think you need to have children to feel part of the tremendous fabric of humanity at all. But at least for me, it did really remind me of that. Certainly reminded me of my own mortality experience.
And I think that it was meaningful for me personally to find out that I was sick while I was having my kids. And certainly I don't think you need to have children to feel part of the tremendous fabric of humanity at all. But at least for me, it did really remind me of that. Certainly reminded me of my own mortality experience.
And I also think that I was in a place where I was really accepting of the fact that I was getting older and moving into a different phase of life. And all of us, if we have the good luck to live for a long time, are going to have our bodies fail us. And maybe it's actually nice for me to know the way in which my body seems to be sensitive.
And I also think that I was in a place where I was really accepting of the fact that I was getting older and moving into a different phase of life. And all of us, if we have the good luck to live for a long time, are going to have our bodies fail us. And maybe it's actually nice for me to know the way in which my body seems to be sensitive.
And I also think that I was in a place where I was really accepting of the fact that I was getting older and moving into a different phase of life. And all of us, if we have the good luck to live for a long time, are going to have our bodies fail us. And maybe it's actually nice for me to know the way in which my body seems to be sensitive.
And I try not to be dire about it because I continue to be really healthy. The itching is annoying. The chronic fatigue is annoying. The type 1 diabetes is deeply annoying, but it is very manageable. But I'm still enjoying really good health a lot of the time and science is advancing. And I try to remember that.
And I try not to be dire about it because I continue to be really healthy. The itching is annoying. The chronic fatigue is annoying. The type 1 diabetes is deeply annoying, but it is very manageable. But I'm still enjoying really good health a lot of the time and science is advancing. And I try to remember that.
And I try not to be dire about it because I continue to be really healthy. The itching is annoying. The chronic fatigue is annoying. The type 1 diabetes is deeply annoying, but it is very manageable. But I'm still enjoying really good health a lot of the time and science is advancing. And I try to remember that.
And in the piece, part of the story was talking about the struggle of just coming to terms with the fact that you might be uncomfortable for a really long time. You are in a body and hopefully you will live long enough for it to fail you. And I talked to two folks who are a lot older than I was just about like, how do you deal with it?
And in the piece, part of the story was talking about the struggle of just coming to terms with the fact that you might be uncomfortable for a really long time. You are in a body and hopefully you will live long enough for it to fail you. And I talked to two folks who are a lot older than I was just about like, how do you deal with it?
And in the piece, part of the story was talking about the struggle of just coming to terms with the fact that you might be uncomfortable for a really long time. You are in a body and hopefully you will live long enough for it to fail you. And I talked to two folks who are a lot older than I was just about like, how do you deal with it?