Aoife Quinn

just to really, really try and get these negotiations between the HSE and Biogen done as quickly as possible.

Like, time was not on our side.

I think just really emphasising that it's a matter of time before you'll say, I lose the ability to walk, speak.

Like that each individual is so different.

But like for me, 50%, I know this drug could save my ability to walk, even if it's just for a couple of years.

I can't lose my second son and basically I'm going to be begging up there tomorrow I met Tisha a couple of weeks ago and I said to him since you and Craig's story and how Rory passed away one night on the Saturday he was ground and just didn't wake up the next day I said to Tisha how scary it was to go to bed each night for fear that I wouldn't wake up in the morning

And, like, there's just nothing that can be done for us.

And, like, if any of these policymakers, if they had a child going through this, like, it would not take this long.

It would, yeah.

I know it would.

Thank you.