Barbara Majeski
๐ค PersonAppearances Over Time
Podcast Appearances
But I turned to play patty cake with Steven and he was just laying on the side of the bathtub. And I didn't understand what was going on. I was like, Steven, let's play patty cake. And he was not responding. So I called downstairs and my mother came up, my father came up. It ended up being a big scene. What my brother had was a seizure.
But I turned to play patty cake with Steven and he was just laying on the side of the bathtub. And I didn't understand what was going on. I was like, Steven, let's play patty cake. And he was not responding. So I called downstairs and my mother came up, my father came up. It ended up being a big scene. What my brother had was a seizure.
So I took him out of the bath and ran him to Children's Hospital of Philadelphia. I didn't see him again for almost two months. He ended up stop eating, he slipped into a coma, and I was just six years old waiting for somebody to bring home one of my baby dolls. The twins were mine. They were in my life. They belonged to me.
So I took him out of the bath and ran him to Children's Hospital of Philadelphia. I didn't see him again for almost two months. He ended up stop eating, he slipped into a coma, and I was just six years old waiting for somebody to bring home one of my baby dolls. The twins were mine. They were in my life. They belonged to me.
So I took him out of the bath and ran him to Children's Hospital of Philadelphia. I didn't see him again for almost two months. He ended up stop eating, he slipped into a coma, and I was just six years old waiting for somebody to bring home one of my baby dolls. The twins were mine. They were in my life. They belonged to me.
And before Stephen came home, my mother sat my twin brother and I down and she said, the good news is Stephen's coming home, but you have to be kind to him. He moves slower. And it was at that time they had realized that he had had neurological deficits. They realized in the 90s it was a genetic disorder, but until that point, they had felt that his delayed development was...
And before Stephen came home, my mother sat my twin brother and I down and she said, the good news is Stephen's coming home, but you have to be kind to him. He moves slower. And it was at that time they had realized that he had had neurological deficits. They realized in the 90s it was a genetic disorder, but until that point, they had felt that his delayed development was...
And before Stephen came home, my mother sat my twin brother and I down and she said, the good news is Stephen's coming home, but you have to be kind to him. He moves slower. And it was at that time they had realized that he had had neurological deficits. They realized in the 90s it was a genetic disorder, but until that point, they had felt that his delayed development was...
like due to incidents or we they didn't really know but the fragile x wasn't uncovered until the 90s so my mother says stephen will likely never be able to speak um and i remember saying and this is the serendipity of it i said i said i don't i'll speak for him i said he'll never need to speak i got it i got it like just bring him home
like due to incidents or we they didn't really know but the fragile x wasn't uncovered until the 90s so my mother says stephen will likely never be able to speak um and i remember saying and this is the serendipity of it i said i said i don't i'll speak for him i said he'll never need to speak i got it i got it like just bring him home
like due to incidents or we they didn't really know but the fragile x wasn't uncovered until the 90s so my mother says stephen will likely never be able to speak um and i remember saying and this is the serendipity of it i said i said i don't i'll speak for him i said he'll never need to speak i got it i got it like just bring him home
and i'll take care of him and you know as as crazy as that is it has definitely been um my my moral compass my okay i gotta redirect you know how do i get myself aligned with my purpose my calling and there's just been time and time again when i'm lost in the sauce and i'm very reflective of
and i'll take care of him and you know as as crazy as that is it has definitely been um my my moral compass my okay i gotta redirect you know how do i get myself aligned with my purpose my calling and there's just been time and time again when i'm lost in the sauce and i'm very reflective of
and i'll take care of him and you know as as crazy as that is it has definitely been um my my moral compass my okay i gotta redirect you know how do i get myself aligned with my purpose my calling and there's just been time and time again when i'm lost in the sauce and i'm very reflective of
giving a voice to Stephen, giving a voice to those who can't speak for themselves, using my gifts in service of others. So I think it very much shaped the decisions that I ultimately made, if that makes any sense.
giving a voice to Stephen, giving a voice to those who can't speak for themselves, using my gifts in service of others. So I think it very much shaped the decisions that I ultimately made, if that makes any sense.
giving a voice to Stephen, giving a voice to those who can't speak for themselves, using my gifts in service of others. So I think it very much shaped the decisions that I ultimately made, if that makes any sense.
You know, that's such a good question. And because it all does hinge on the fact that, you know, I knew, like, so I had gone on a...
You know, that's such a good question. And because it all does hinge on the fact that, you know, I knew, like, so I had gone on a...
You know, that's such a good question. And because it all does hinge on the fact that, you know, I knew, like, so I had gone on a...