Ben Ayres
👤 PersonAppearances Over Time
Podcast Appearances
Because as I think we're going to discuss, a lot of their psychosocial needs, unfortunately, are often left behind. We're very grateful this evening that we're able to do this podcast and we've been given this opportunity by Backtable and also by the Global Society of Rare Genital Urinary Tumors, a group that is really passionate about.
education for clinicians and for patients going through the treatment and management of rare genitourinary cancers. So we're very grateful to both these organizations for giving us this opportunity to discuss penile cancer in more detail today. As I said, penile cancer is a very rare cancer. Because of its rarity, there is a lack of awareness.
education for clinicians and for patients going through the treatment and management of rare genitourinary cancers. So we're very grateful to both these organizations for giving us this opportunity to discuss penile cancer in more detail today. As I said, penile cancer is a very rare cancer. Because of its rarity, there is a lack of awareness.
education for clinicians and for patients going through the treatment and management of rare genitourinary cancers. So we're very grateful to both these organizations for giving us this opportunity to discuss penile cancer in more detail today. As I said, penile cancer is a very rare cancer. Because of its rarity, there is a lack of awareness.
There's a lack of awareness amongst the general public. Unfortunately, there's also at times a lack of awareness from the medical staff that the patients may seek for help. This can often lead to delay in diagnosis. And on top of this, there's a lot of stigma associated with this cancer. And as a result, patients can often feel very, very isolated.
There's a lack of awareness amongst the general public. Unfortunately, there's also at times a lack of awareness from the medical staff that the patients may seek for help. This can often lead to delay in diagnosis. And on top of this, there's a lot of stigma associated with this cancer. And as a result, patients can often feel very, very isolated.
There's a lack of awareness amongst the general public. Unfortunately, there's also at times a lack of awareness from the medical staff that the patients may seek for help. This can often lead to delay in diagnosis. And on top of this, there's a lot of stigma associated with this cancer. And as a result, patients can often feel very, very isolated.
So, Rob, I wonder if you could tell us more about the isolations that patients with penile cancer often feel and what's been told to you by the patients you've worked with in the past.
So, Rob, I wonder if you could tell us more about the isolations that patients with penile cancer often feel and what's been told to you by the patients you've worked with in the past.
So, Rob, I wonder if you could tell us more about the isolations that patients with penile cancer often feel and what's been told to you by the patients you've worked with in the past.
And Rick, you said at the start of all the advocacy roles that you've been involved in, how do you think advocacy can play a role here? How can advocacy play? reduce isolation and how can it help with raising awareness of these rare cancers such as penile cancer?
And Rick, you said at the start of all the advocacy roles that you've been involved in, how do you think advocacy can play a role here? How can advocacy play? reduce isolation and how can it help with raising awareness of these rare cancers such as penile cancer?
And Rick, you said at the start of all the advocacy roles that you've been involved in, how do you think advocacy can play a role here? How can advocacy play? reduce isolation and how can it help with raising awareness of these rare cancers such as penile cancer?
So when patients present with any cancer, they go through a journey and clearly with penile cancer, there's that additional stigma associated with that journey that can impact on how they process things and how much they open up and discuss things and move through the psychological journey that they need to if they're going to adapt to the new situation.
So when patients present with any cancer, they go through a journey and clearly with penile cancer, there's that additional stigma associated with that journey that can impact on how they process things and how much they open up and discuss things and move through the psychological journey that they need to if they're going to adapt to the new situation.
So when patients present with any cancer, they go through a journey and clearly with penile cancer, there's that additional stigma associated with that journey that can impact on how they process things and how much they open up and discuss things and move through the psychological journey that they need to if they're going to adapt to the new situation.
But when it comes to awareness, patients tend to fall into two categories. There's a patient that has had a condition for a number of months or years and they've been seeking healthcare advice about this and seeing lots of different doctors, pharmacists, nurses potentially, often being given multiple different creams to try on the lesion.
But when it comes to awareness, patients tend to fall into two categories. There's a patient that has had a condition for a number of months or years and they've been seeking healthcare advice about this and seeing lots of different doctors, pharmacists, nurses potentially, often being given multiple different creams to try on the lesion.
But when it comes to awareness, patients tend to fall into two categories. There's a patient that has had a condition for a number of months or years and they've been seeking healthcare advice about this and seeing lots of different doctors, pharmacists, nurses potentially, often being given multiple different creams to try on the lesion.
And so ultimately, when they are diagnosed with a penile cancer, they not only go through all the psychological stress of being diagnosed with a cancer and the part of the body that it's on, it's a double hit for them. They've also got this anger, this frustration, this disappointment that they had tried to seek help for this.