Carys Kenna

Yes, 100%.

I think it was the end of the beginning of 2020, I started having really, really bad seizures.

These were happening to me quite frequently, essentially falling onto the ground and shaking.

And at the time, I was just, I had no idea what was happening.

I was brought into hospital and at the time I was told I had epilepsy.

Now, I had done a scan called an EEG, which is typically what they do for epilepsy.

However, 50% of epileptics come back with a clear EEG.

So at the time, given I was having seizures, it was assumed I was having epilepsy.

I was taking epileptic seizures and I was prescribed anti-epileptic medication.

Unfortunately, taking this medication actually made my seizures significantly worse.

And I was hospitalized over 20 times throughout 2020 from taking seizures.

And it was just an absolutely terrifying experience.

I had no idea what was happening.

I knew the medication wasn't working.

And in 2021, I had a particularly bad seizure.

Like, I think I had multiple seizures in a row.

An ambulance was called and I was administered anti-epileptic drugs.

However, when I came around, I was paralyzed in my right leg and I was unable to walk.

And it was at this point in the hospital that I was assessed by a neurologist who said that he didn't think I had epilepsy.

And he thought I had another condition called functional neurological disorder, which we know as FND.