Carys Kenna

I was using the college service in terms of the doctor.

I was trying to keep myself afloat.

I was trying to complete my degree.

So I did manage to once I had finished my degree, I managed to kind of settle in a place.

I managed to get to get a GP up in Dublin and I asked my GP to refer me back.

I'm part of a charity, FMD Ireland, and they had recommended being referred to a neuropsychiatry clinic in St.

Vincent's.

So I asked my GP to refer me to that.

I would need to be seen by a neurologist first before I get referred to the clinic.

That referral was made in 2023.

To this day, I have not had any update on it.

So my treatment for FND has literally been me trying to best manage the factors that contribute to my seizures.

And I just want to emphasize that FND is such a huge condition.

Seizures aren't the only thing people get.

Now, I'm fortunate that my main symptom is seizures.

There's a lot of people out there who...

still can't walk from FND.

There's people who have swallowing difficulties, people who can't speak from it.

And it's just, there's just such a barrier for access to treatment.

I just, you know, any update, I try to get updates on my referral and I just haven't heard anything back.