Craig Coady

Good morning, Clare.

Thanks for having me on here.

Not at all.

Yes, Clare.

I pretty much sold my soul to the ministers and to the CDs.

and Senators in Leinster House last Wednesday evening.

It wasn't easy to, you know, talk about my situation at home with my family, with Dubai's mum.

Again, she is a different rare disease, Huntington's disease.

This is Della.

That's Della, correct, yeah.

She's getting full-time care now in Dublin in a Huntington's, they specialise with Huntington's in a hospital.

She was diagnosed five years ago.

And two years later, my eldest was playing in a soccer match and I just noticed he was off balance.

He just wasn't walking right, running right, trying to hold himself up.

So I brought him to the GP and the GP noticed it as well.

So we went to the CUH in Cork and the neurologist said,

noticed that when he closed his eyes and stood up straight that he was falling.

So the bloods, they sent the bloods over to the UK and unfortunately came back that he had Fidrix Ataxia.

And then a year later, that with Rory, um, he wasn't showing any off balance, nothing like that.

Um, it was, uh, Dara Finn, the cardiac, uh, um, in COH just said, look, just bring up Rory.