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Craig Coady

๐Ÿ‘ค Speaker
178 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
A father plea for drug for rare disease

So, yeah, look, it's just not right.

The Claire Byrne Show
A father plea for drug for rare disease

It's just not right for children to leave them suffer like this.

The Claire Byrne Show
A father plea for drug for rare disease

It's just not right.

The Claire Byrne Show
A father plea for drug for rare disease

Yeah.

The Claire Byrne Show
A father plea for drug for rare disease

And he was...

The Claire Byrne Show
A father plea for drug for rare disease

We had a bit of problem with him for him accepting to have someone with him in the exam, you know, like everyone else will be in, wouldn't be called while he'll be in the special room doing his, um, his English today, um, essays and all that, but there'd be someone writing it down for him.

The Claire Byrne Show
A father plea for drug for rare disease

And that's not, you know, you know, yourself, a teenager, 16 years of age, they want to be with everyone else and having the laugh and the crack and, you know,

The Claire Byrne Show
A father plea for drug for rare disease

I don't have no choice.

The Claire Byrne Show
A father plea for drug for rare disease

They put me out there and I'll do whatever I can to get this drug.

The Claire Byrne Show
A father plea for drug for rare disease

As I said to you, you know, he's all I have.

The Claire Byrne Show
A father plea for drug for rare disease

I'm left in the home of a family of four.

The Claire Byrne Show
A father plea for drug for rare disease

It's just the two of us left.

The Claire Byrne Show
A father plea for drug for rare disease

And, you know, as I said with Rory, he wasn't, if it was anyone to, you know, to pass first, we thought we'd be potty, but that will tell you about fiduciataxia.

The Claire Byrne Show
A father plea for drug for rare disease

You can pick anyone.

The Claire Byrne Show
A father plea for drug for rare disease

It's an early stage.

The Claire Byrne Show
A father plea for drug for rare disease

I never thought once that Rory would be gone from us, you know.

The Claire Byrne Show
A father plea for drug for rare disease

I said to myself, look, okay, both boys have fiduciataxia.

The Claire Byrne Show
A father plea for drug for rare disease

we'll get through this together as well but I never thought it would come to this and Craig I never thought I would never thought I'd be up against a house selling my soul begging them begging and it's not right for a father

The Claire Byrne Show
A father plea for drug for rare disease

Well, they say that you live with federal tax, you live till 40.

The Claire Byrne Show
A father plea for drug for rare disease

But it's different for everyone, Clare, you know.