Craig Cody

He can no longer walk a

10 minutes that's about it with with Padraig his speech is starting to go a little bit now they did put a pacemaker into him in Crumlin just to you know just to give him some bit of peace because he does say every night when he goes to bed I can feel it off him am I going to see you in the morning oh no

Yeah, it's really hard.

And there is a SkyClarity drug out there and it's in other countries in Europe and it is working.

And it's, you know, we're just hoping that they can get across the line here to give them some bit of hope.

like the 200 others that have Fidrix Ataxia.

It slows it down 50%.

Now, I heard it's even 55%.

So, look, what he's lost, unfortunately, he'll never get back.

So, every day, as you were saying, it

it's a ticking clock.

You would hope to think that, yes.

Yes.

Even 40.

You know, as I said, it can slow the disease by 50%.

And that has been proven in America and in Europe, some of the countries in Europe.

We're supposed to be a rich country.

They have this drug in Cyprus.

So they can build bicycle sheds.

Basically, they can build two bicycle sheds and that drug could do potty for a year.