Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
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That's concerning because they've had Ehlers-Danlos their whole life. So again. So it's something you either have or you don't have.
So they would have been born with it. Now we could go into the whole, there's that sidebar of Ehlers-Danlos with fractures, which it's a whole nother thing, but often you wouldn't know in a little child that they have Ehlers-Danlos or, and yes, I'm sure the pain builds up over time just because as we get older and our joints get arthritic, cause we're old that there's then going to be new problems.
The point is that the diagnosis marking is, the point of no return where they become bedridden and wheelchair-bound and needing tubes now to feed, that timeline just is what is so concerning.
This is the downward trajectory that is both rapid and never seems to have that where it starts to climb back up the other way again. And if it does, it's this very little just to have it kind of go down again. So it's the pattern. Yeah. So, okay. So where are we at this point? So we are at Kaiser San Diego. That is where the first NG tube is placed. So nose to stomach to help feed.
And that's because she was showing signs of malnutrition or weight loss. and pain is still the word that pops up time and time again. So she is actually transferred, are you ready, to Kaiser Permanente LA for ketamine treatments. So what do you think?
And I think the one good piece of this is they were at Kaiser Permanente San Diego, which is a very good hospital. They were transferred to Kaiser Permanente LA. So it sounds like it was done within the correct, you know, channels and going to a place where she was actually in the ICU, it seems, when she got it. So getting the appropriate monitoring and all of that.
So it sounds like they were probably following more of a protocol of what Stanford is doing. And the thing is, she did not improve at all. They said the ketamine was unsuccessful. But during her time at Kaiser LA, she developed a whole slew of new symptoms, one of which was vision loss. And this comes up time and again in the case because...
The parents thought is that it was related to medication she was put on at Kaiser LA, which very well, I mean, there are medications we all know with side effects that could be part of it. According to the documentation by the defendants, there were normal opto exams throughout that time period. And despite those normal exams, the parents were still saying she was having vision loss.
So this is a he said, she said of when it came about, what the exam showed. Just to remind us, who are the defendants in the case specifically? Oh, yeah. Oh, there's a lot. So Kaiser Permanente San Diego to Kaiser Permanente LA.
Right, but it's going to be the ones at Rady's Children's that come in a little bit later that are the ones that are kind of the bulk of this, the lawsuit component. But I think these parts of the story we have that help us see how we got to where we are at Rady's and why maybe Rady's was thinking what they were And the parents were kind of coming in thinking what they were.
So it's kind of a good setup. But at this point, she also developed what are called psychogenic non-epileptic seizures, which pseudo seizures is another name. But the sidebar to that is people were still saying, and you will find it all over TikTok, rabbit hole, that they are still saying, I am having seizures. They are just of the psychogenic non-epileptic kind.
Well, I mean, but then they're not, like the word seizure people associate with, It is an actual electric change in your brain that is causing you to have a seizure. So, again, people who truly suffer from epilepsy and seizures using that term even is problematic.
this. Right. So it's a version of a functional neurologic disorder, which we covered a lot during the about the hysterical podcast and the story of kind of mass hysteria or mass psychogenic illness.
The idea is it's our body's outward manifestation of something that is psychologically troubling or so inside stressors or other things, external stressors that are kind of manifesting themselves with physical physical symptoms. And the thing is, vision loss can be a version of a functional neurologic disorder where all of the testing is normal, but the patient truly cannot see.
I mean, in their head, they do not see. Or in their head, they do not feel their left arm or whatever it is. The thing is, there is no physiologic reason for the symptoms. And so that's the idea with these events, these psychogenic non-epileptic events. So psychogenic meaning, again, it's stemming from something within us that is manifesting physically.
And then it's non-epileptic, meaning they've been captured on this EEG where you're being put on and it's recording your brainwaves and it was not epileptic. So it is not coming from your brainwaves. And then again, that word seizure is, technically means those abnormal movements, but realistically in medicine, when you say seizure, it is assumed you mean of the epileptic variety.
So that's why now we're changing it to events. And I think that is an important distinction too, because even in this story, it's One of the claims made in the report to DCF or to their HHSA in California was that parents are claiming diagnoses that were rolled out. And so continuing to say she had seizures, despite it being explained that these were not true seizures. Got it.
And then also at Kaiser LA is when she gets an NJ tube. So now we're escalating nose all the way down into the jejunum or into the intestines to feed her. So that to me implies that something was not going well when they were feeding her stomach.
To normal, yep, to treatments. And this is a kid who ate normally before. So again, where did we go? How are we here now? And then her first central venous catheter is also placed during that time. Maybe it was placed for the ketamine and then stayed in. That's, that I don't know because there's not a lot of detail. Okay.
So I think we both know that this escalation in GI is a big piece and is very concerning. And even I think Kaiser LA got concerned, wow, this is escalating. And so the ketamine didn't work, which was really why they were brought into the equation. And so she gets sent back to Kaiser San Diego.
Showing 341–360 of 498 · page 18 of 25
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