Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
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Appearances
Because if you look back over the timeline, the story has only grown over time from they do these staring episodes to now they're turning blue and I need to give them CPR to now they're lasting 30 minutes and I have no way to stop them. So again, the story escalates and escalates and escalates until somebody gives them the medication. And then at the next place, it escalates even further.
And again, negative testing can prove certain things. ever disprove something completely. I mean, I'm sorry, I can't, but there are certain situations and I think the patterns show that there are certain conditions and certain things that do come up because they are those ones that leave gray area.
Like they have congenital heart disease and you're like, well, we did an echo. No, they don't. Right.
And I think it's interesting that, so I am a huge fan of support sites for people.
So the idea of MitoAction is that it is a site to gain information for families, for those suffering from mitochondrial disease, for those who know people with mitochondrial disease, that they can get more information. Their mission statement is basically that we want people to learn more, understand more, and we want to be a source for them.
And we also want to give back to people who are suffering from this and, you know, help them get make a wish trips or, you know, fund different things that these families might need. So I think it's a beautiful concept. And this exists for pretty much every condition. under the sun now because of the internet and everything we can do.
So I am concerned because there was a time when these support groups, I would say, were the best thing that happened. We have a camp here in Florida called Camp Boggy Creek.
where kids with say there's a diabetes week when all kids with type 1 diabetes go to Camp Boggy Creek they have endocrinologists on staff to administer insulin and to keep track of the kids but they can meet other kids who have the same condition and then the parents can meet other parents and I think it's brilliant I mean it's it really helps these kids and it really helps these families and
And now you have things where I am disappointed to see that things have changed a little bit. And unfortunately in this world, as we've said, there are people with good intentions and people with bad intentions. And if you read Mito Action, it seems right off the bat that they have good intentions.
But I can tell you there are sites for congenital heart disease and asthma and leukemia that don't have a whole section called How to Respond to Allegations of Medical Child Abuse. That concerns me, that it has to be on their, basically on their main page with a link to this area.
And if you read every little subsection, there's a sentence along the lines of, this might actually deter a physician from considering medical child abuse if you do it this way. Or be careful because this is one of the things they look for with medical child abuse. This is a red flag for medical child abuse throughout the website. And that is a red flag to me. That's concerning.
It's implied throughout this site that this is happening all the time and that it's almost a witch hunt where we're going on Facebook to find every parent who might be a perpetrator. No, it's coming in front of us and we are seeing- Something that you absolutely have the time and bandwidth to do. Oh, I mean, it's all I do. I mean, I should talk. I do go down rabbit holes, but that's not it.
And I think it's true. It's the way this whole site, it just really bothered me because it'll be, it talks about communicating with medical professionals. I think that's important. Parents need to know how do I advocate for my child? I love advocacy is a huge word that I take very seriously. You do advocate for your child, but I as a pediatrician also advocate for your child. Like
Like I've had to go to bat with, you know, the MRI team to see, can I get an MRI done today? Because I'm truly concerned about this patient. So again, I am also advocating for children every day. But to start that paragraph with, you're going to find yourself advocating for your child when they have a complex condition.
If the child is capable of advocating for himself, by all means, allow them to speak to their doctor. This is good practice, but can also protect the parents against concerns for medical child abuse. I mean, again, why not just say it's good practice? I mean, I love talking to the kids because I feel like kids are freaking brutally honest. But they also they can tell some of their own story.
And why is that not just good practice? Why is it do it so you don't get accused? And that's how all of this starts.
I mean, again, it's targeting every – I don't know. It just bothers me because it's like you may be trying to help the good parents. Like I want to believe that, but truthfully – How do you know? So you are enabling the ones who are abusing. This is a net that you're just casting out into everybody out there.
So you're not caveating it with, hey, if you really are abusing your kid, don't do these things. No, you're telling them to delete their Facebook accounts. Right.
Exactly. And I gave the example, I think on one of the other ones that was not remembering your kid's birth weight, like when you're in a really stressful, like, you know, in a situation, how much did he weigh when he was born?
Oh, I can't remember if it was him or the other one or my other five kids, whatever that how much they weigh versus they had the cord wrapped around their neck to the point they needed CPR and they were put intubated and put in the NICU for three weeks. No, they weren't. Right.
Showing 421–440 of 498 · page 22 of 25
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