Dr. Bex

some of the you know long-term consequences and complications of these are actually getting a little bit lost in the shuffle because there are all these places and all these doctors you know that are diagnosing these things kind of in different ways and maybe using different criteria and in a way it's it's kind of what happened with covid with adhd diagnoses right where things are getting diagnosed now even on the internet by other people and the people who are truly suffering from these things at times are now facing drug shortages

some of the you know long-term consequences and complications of these are actually getting a little bit lost in the shuffle because there are all these places and all these doctors you know that are diagnosing these things kind of in different ways and maybe using different criteria and in a way it's it's kind of what happened with covid with adhd diagnoses right where things are getting diagnosed now even on the internet by other people and the people who are truly suffering from these things at times are now facing drug shortages

some of the you know long-term consequences and complications of these are actually getting a little bit lost in the shuffle because there are all these places and all these doctors you know that are diagnosing these things kind of in different ways and maybe using different criteria and in a way it's it's kind of what happened with covid with adhd diagnoses right where things are getting diagnosed now even on the internet by other people and the people who are truly suffering from these things at times are now facing drug shortages

inability to get care from providers because of all of this. So I think that's more, I think what Andrea was trying to say is that these conditions exist and they can be debilitating and there's concerns with it. It's just, it's more that how do we kind of find a place where everybody's getting the care they need, but the appropriate care, you know, in the appropriate places. So.

inability to get care from providers because of all of this. So I think that's more, I think what Andrea was trying to say is that these conditions exist and they can be debilitating and there's concerns with it. It's just, it's more that how do we kind of find a place where everybody's getting the care they need, but the appropriate care, you know, in the appropriate places. So.

inability to get care from providers because of all of this. So I think that's more, I think what Andrea was trying to say is that these conditions exist and they can be debilitating and there's concerns with it. It's just, it's more that how do we kind of find a place where everybody's getting the care they need, but the appropriate care, you know, in the appropriate places. So.

okay so madison goes to new york um to see this specialist dr boling they say so what is his he's a specialist in ellers danlos like what does he specialize in so he is a neurosurgeon by training and it sounds like over time he's kind of gotten into this niche of ehlers-danlos syndrome and his specific what he is specifically looking at is the connection between ehlers-danlos and what's called a chiari malformation which is

okay so madison goes to new york um to see this specialist dr boling they say so what is his he's a specialist in ellers danlos like what does he specialize in so he is a neurosurgeon by training and it sounds like over time he's kind of gotten into this niche of ehlers-danlos syndrome and his specific what he is specifically looking at is the connection between ehlers-danlos and what's called a chiari malformation which is

okay so madison goes to new york um to see this specialist dr boling they say so what is his he's a specialist in ellers danlos like what does he specialize in so he is a neurosurgeon by training and it sounds like over time he's kind of gotten into this niche of ehlers-danlos syndrome and his specific what he is specifically looking at is the connection between ehlers-danlos and what's called a chiari malformation which is

where part of your brain the cerebellum actually hangs a little bit lower into your spinal canal and at some point based on measurements it can start to have symptoms or things associated with it and then there's the tethered cord syndrome that he questions or thinks about in this case which is where your spinal cord is actually attached to the tissues surrounding

where part of your brain the cerebellum actually hangs a little bit lower into your spinal canal and at some point based on measurements it can start to have symptoms or things associated with it and then there's the tethered cord syndrome that he questions or thinks about in this case which is where your spinal cord is actually attached to the tissues surrounding

where part of your brain the cerebellum actually hangs a little bit lower into your spinal canal and at some point based on measurements it can start to have symptoms or things associated with it and then there's the tethered cord syndrome that he questions or thinks about in this case which is where your spinal cord is actually attached to the tissues surrounding

it in the canal and it can cause symptoms basically from your waist down. And then the other one is something called cranial cervical instability, where basically your skull and your cervical spine, there's kind of instability and that can have its own set of symptoms. So it seems like those three diagnoses that he works most specifically on and then their links to Ehlers-Danlos syndrome.

it in the canal and it can cause symptoms basically from your waist down. And then the other one is something called cranial cervical instability, where basically your skull and your cervical spine, there's kind of instability and that can have its own set of symptoms. So it seems like those three diagnoses that he works most specifically on and then their links to Ehlers-Danlos syndrome.

it in the canal and it can cause symptoms basically from your waist down. And then the other one is something called cranial cervical instability, where basically your skull and your cervical spine, there's kind of instability and that can have its own set of symptoms. So it seems like those three diagnoses that he works most specifically on and then their links to Ehlers-Danlos syndrome.

And he works with a neurologist, Dr. Kula, who I believe since has retired, according to the website. But at that time when Madison went, it was Dr. Balagnesi and Dr. Kula. And it's not extremely clear in the court documents what testing was done or how much was done when she was there. But they do give us a list of diagnoses that came out of that visit.

And he works with a neurologist, Dr. Kula, who I believe since has retired, according to the website. But at that time when Madison went, it was Dr. Balagnesi and Dr. Kula. And it's not extremely clear in the court documents what testing was done or how much was done when she was there. But they do give us a list of diagnoses that came out of that visit.

And he works with a neurologist, Dr. Kula, who I believe since has retired, according to the website. But at that time when Madison went, it was Dr. Balagnesi and Dr. Kula. And it's not extremely clear in the court documents what testing was done or how much was done when she was there. But they do give us a list of diagnoses that came out of that visit.

So to start with, they do say they agree with the Ehlers-Danlos diagnosis. The other one that we had already spoken about was the diagnosis of POTS or postural orthostatic tachycardia syndrome. And at least from the documents, it seems like a tilt table test was done in New York that did, according to them, confirm the POTS diagnosis.

So to start with, they do say they agree with the Ehlers-Danlos diagnosis. The other one that we had already spoken about was the diagnosis of POTS or postural orthostatic tachycardia syndrome. And at least from the documents, it seems like a tilt table test was done in New York that did, according to them, confirm the POTS diagnosis.