Dr. Bex

So it does sound like this may have been, you know, something along the lines that maybe was an appropriate diagnosis depending on how she presented. But the recommendation, which it should have been, was to go into an inpatient pain program where she can get treatment from all sides.

So it does sound like this may have been, you know, something along the lines that maybe was an appropriate diagnosis depending on how she presented. But the recommendation, which it should have been, was to go into an inpatient pain program where she can get treatment from all sides.

So it does sound like this may have been, you know, something along the lines that maybe was an appropriate diagnosis depending on how she presented. But the recommendation, which it should have been, was to go into an inpatient pain program where she can get treatment from all sides.

So whether that's medication and therapy and physical therapy and psychotherapy and all of these things together in one place is the ideal treatment. But it is still rare to have to be admitted actually into the inpatient unit of a hospital. from pain or pain associated with something like CRPS, typically they come in for other things.

So whether that's medication and therapy and physical therapy and psychotherapy and all of these things together in one place is the ideal treatment. But it is still rare to have to be admitted actually into the inpatient unit of a hospital. from pain or pain associated with something like CRPS, typically they come in for other things.

So whether that's medication and therapy and physical therapy and psychotherapy and all of these things together in one place is the ideal treatment. But it is still rare to have to be admitted actually into the inpatient unit of a hospital. from pain or pain associated with something like CRPS, typically they come in for other things.

So that always stands out to me that this is probably already a little bit outside of the norm or outside of the ordinary, you know, for Radies in this situation.

So that always stands out to me that this is probably already a little bit outside of the norm or outside of the ordinary, you know, for Radies in this situation.

So that always stands out to me that this is probably already a little bit outside of the norm or outside of the ordinary, you know, for Radies in this situation.

Right. And it does sound like, again, a little bit different than the story we heard before is we're now two years into her symptoms and they did an outpatient pain program. There was a pain psychotherapist involved at somewhere. They were using medication, biofeedback. It does sound like they were trying these other things that are often recommended.

Right. And it does sound like, again, a little bit different than the story we heard before is we're now two years into her symptoms and they did an outpatient pain program. There was a pain psychotherapist involved at somewhere. They were using medication, biofeedback. It does sound like they were trying these other things that are often recommended.

Right. And it does sound like, again, a little bit different than the story we heard before is we're now two years into her symptoms and they did an outpatient pain program. There was a pain psychotherapist involved at somewhere. They were using medication, biofeedback. It does sound like they were trying these other things that are often recommended.

Yet, despite all of it and despite two programs,

Yet, despite all of it and despite two programs,

Yet, despite all of it and despite two programs,

pretty invasive surgeries it sounds like she was still getting admitted for this severe unrelenting pain and somewhere along the way it does start to be you know pain associated like whole body pain or pain in other locations but this still at this point I would say the shoulder and the multiple dislocations of the shoulder is really a big part of it and that is something we see with Ehlers-Danlos that they that their joints can dislocate easier than you know anyone else's would.

pretty invasive surgeries it sounds like she was still getting admitted for this severe unrelenting pain and somewhere along the way it does start to be you know pain associated like whole body pain or pain in other locations but this still at this point I would say the shoulder and the multiple dislocations of the shoulder is really a big part of it and that is something we see with Ehlers-Danlos that they that their joints can dislocate easier than you know anyone else's would.

pretty invasive surgeries it sounds like she was still getting admitted for this severe unrelenting pain and somewhere along the way it does start to be you know pain associated like whole body pain or pain in other locations but this still at this point I would say the shoulder and the multiple dislocations of the shoulder is really a big part of it and that is something we see with Ehlers-Danlos that they that their joints can dislocate easier than you know anyone else's would.

So summer of 2018, two years after that surf camp, she actually got diagnosed with POTS, which is Postural Orthostatic Tachycardia Syndrome, another one of these acronyms that seems to come up time and again.

So summer of 2018, two years after that surf camp, she actually got diagnosed with POTS, which is Postural Orthostatic Tachycardia Syndrome, another one of these acronyms that seems to come up time and again.