Dr. Bex

And so you're wondering, my biggest thing in all of this right now is where in the story does intervention happen to try to be realistic and have a realistic plan of care and a realistic goal for a family, for a patient, all of them that kind of keeps the escalation in check because you can kind of already feel it starting to escalate at the beginning of this admission.

She's already now been two years with this debilitating, you know, kind of unrelenting pain. And now we're starting to have GI side effects or GI symptoms as well, which Andrea and I know is often a side effect of medications too. So the question is, did we iatrogenically or did the physicians cause this by medication she was on?

She's already now been two years with this debilitating, you know, kind of unrelenting pain. And now we're starting to have GI side effects or GI symptoms as well, which Andrea and I know is often a side effect of medications too. So the question is, did we iatrogenically or did the physicians cause this by medication she was on?

She's already now been two years with this debilitating, you know, kind of unrelenting pain. And now we're starting to have GI side effects or GI symptoms as well, which Andrea and I know is often a side effect of medications too. So the question is, did we iatrogenically or did the physicians cause this by medication she was on?

Or is this a second symptom, third symptom, whatever you want to say of this overarching story?

Or is this a second symptom, third symptom, whatever you want to say of this overarching story?

Or is this a second symptom, third symptom, whatever you want to say of this overarching story?

Well, I can start with POTS. POTS itself does not have GI connections. The idea is the reason tubes and central lines sometimes come into the picture is more of the need for a hydration and hydration status above and beyond maybe what another person would need to drink in a day. And so whether they are able to take all of that by mouth or not, are unable to.

Well, I can start with POTS. POTS itself does not have GI connections. The idea is the reason tubes and central lines sometimes come into the picture is more of the need for a hydration and hydration status above and beyond maybe what another person would need to drink in a day. And so whether they are able to take all of that by mouth or not, are unable to.

Well, I can start with POTS. POTS itself does not have GI connections. The idea is the reason tubes and central lines sometimes come into the picture is more of the need for a hydration and hydration status above and beyond maybe what another person would need to drink in a day. And so whether they are able to take all of that by mouth or not, are unable to.

And then that's how that door is open into the world of tubes and lines with Ehlers-Danlos. I did a little digging because again, Ehlers-Danlos is often something in pediatrics or in medicine that is a secondary diagnosis, something that you may know the child has, but isn't necessarily the reason they're at least with me in the hospital.

And then that's how that door is open into the world of tubes and lines with Ehlers-Danlos. I did a little digging because again, Ehlers-Danlos is often something in pediatrics or in medicine that is a secondary diagnosis, something that you may know the child has, but isn't necessarily the reason they're at least with me in the hospital.

And then that's how that door is open into the world of tubes and lines with Ehlers-Danlos. I did a little digging because again, Ehlers-Danlos is often something in pediatrics or in medicine that is a secondary diagnosis, something that you may know the child has, but isn't necessarily the reason they're at least with me in the hospital.

But we do always consider those secondary and third diagnoses as, is this playing a role? So it does seem like kids with Ehlers-Danlos, um,

But we do always consider those secondary and third diagnoses as, is this playing a role? So it does seem like kids with Ehlers-Danlos, um,

But we do always consider those secondary and third diagnoses as, is this playing a role? So it does seem like kids with Ehlers-Danlos, um,

which the idea is that they have hypermobile joints so their joints are very kind of floppy but because of that the rest of their body is overcompensating for their they're always trying to balance their joints and the thing is if your joints are floppy or loose then there's ideas that like your pelvic floor is loose which affects your abdominal motility or your gi motility um

which the idea is that they have hypermobile joints so their joints are very kind of floppy but because of that the rest of their body is overcompensating for their they're always trying to balance their joints and the thing is if your joints are floppy or loose then there's ideas that like your pelvic floor is loose which affects your abdominal motility or your gi motility um

which the idea is that they have hypermobile joints so their joints are very kind of floppy but because of that the rest of their body is overcompensating for their they're always trying to balance their joints and the thing is if your joints are floppy or loose then there's ideas that like your pelvic floor is loose which affects your abdominal motility or your gi motility um

like your chest between your ribs, everything are affected. Are you more at risk for like getting a bad pneumonia or something like that? And so I think it's all this stuff that is known to be associated. So a lot of these kids have maybe slow GI motility, constipation, things that we see in a lot of kids for a lot of different reasons. It just, again, it's the extremes of it.