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Dr. Bex

๐Ÿ‘ค Speaker
1494 total appearances

Appearances Over Time

Podcast Appearances

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And sometimes I think ignorance is bliss in a way that when we can find so much information. So what if I found out now at my age that shall remain nameless or I have a flaw in my mitochondria? Does that... affect me? I mean, I think I've done okay, right? And maybe I'm tired sometimes and maybe I have this sometimes, but I think it's that it has become this whole world.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And sometimes I think ignorance is bliss in a way that when we can find so much information. So what if I found out now at my age that shall remain nameless or I have a flaw in my mitochondria? Does that... affect me? I mean, I think I've done okay, right? And maybe I'm tired sometimes and maybe I have this sometimes, but I think it's that it has become this whole world.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And sometimes I think ignorance is bliss in a way that when we can find so much information. So what if I found out now at my age that shall remain nameless or I have a flaw in my mitochondria? Does that... affect me? I mean, I think I've done okay, right? And maybe I'm tired sometimes and maybe I have this sometimes, but I think it's that it has become this whole world.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And some of times, like Andrea was saying, it is not just you have mitochondrial disease. It is the most severe debilitating wheelchair bound G-tubes, ports, PICC lines. That's where I struggle because those kids that truly do have mitochondrial disease and diagnosed at a young age, went through all of that and often didn't make it. So.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And some of times, like Andrea was saying, it is not just you have mitochondrial disease. It is the most severe debilitating wheelchair bound G-tubes, ports, PICC lines. That's where I struggle because those kids that truly do have mitochondrial disease and diagnosed at a young age, went through all of that and often didn't make it. So.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And some of times, like Andrea was saying, it is not just you have mitochondrial disease. It is the most severe debilitating wheelchair bound G-tubes, ports, PICC lines. That's where I struggle because those kids that truly do have mitochondrial disease and diagnosed at a young age, went through all of that and often didn't make it. So.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Correct. The problem with mitochondria... Not the problem. I mean, thank God for them. But the thing about mitochondria is they're in every cell in our body. So it also allows for symptoms in every organ system. So I think that is another reason that maybe it does come up is that because they're everywhere... they can affect everything.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Correct. The problem with mitochondria... Not the problem. I mean, thank God for them. But the thing about mitochondria is they're in every cell in our body. So it also allows for symptoms in every organ system. So I think that is another reason that maybe it does come up is that because they're everywhere... they can affect everything.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Correct. The problem with mitochondria... Not the problem. I mean, thank God for them. But the thing about mitochondria is they're in every cell in our body. So it also allows for symptoms in every organ system. So I think that is another reason that maybe it does come up is that because they're everywhere... they can affect everything.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, those most severe cases, those kids, one of the reasons they struggle so much is because you need mitochondria for all of it. And again, I think that's why they do show up in these cases. The interesting thing is though, mitochondrial disease, like Andrea was saying, you need them from the day you are born. So

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, those most severe cases, those kids, one of the reasons they struggle so much is because you need mitochondria for all of it. And again, I think that's why they do show up in these cases. The interesting thing is though, mitochondrial disease, like Andrea was saying, you need them from the day you are born. So

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, those most severe cases, those kids, one of the reasons they struggle so much is because you need mitochondria for all of it. And again, I think that's why they do show up in these cases. The interesting thing is though, mitochondrial disease, like Andrea was saying, you need them from the day you are born. So

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

It's the ones that show up in adulthood or teenage years, not to say there aren't some specific ones that do. But it also brings into question, like, what were your mitochondria doing for those first 15 years? Because we need them our whole lives.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

It's the ones that show up in adulthood or teenage years, not to say there aren't some specific ones that do. But it also brings into question, like, what were your mitochondria doing for those first 15 years? Because we need them our whole lives.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

It's the ones that show up in adulthood or teenage years, not to say there aren't some specific ones that do. But it also brings into question, like, what were your mitochondria doing for those first 15 years? Because we need them our whole lives.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

I think this is a, I mean, it's a very slippery slope, I think, and it's difficult to kind of tease it out. But at the end of the day, physicians should not be seeing some of these diagnoses on a problem list and necessarily changing how they address a patient when they're in front of them, right?

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

I think this is a, I mean, it's a very slippery slope, I think, and it's difficult to kind of tease it out. But at the end of the day, physicians should not be seeing some of these diagnoses on a problem list and necessarily changing how they address a patient when they're in front of them, right?

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

I think this is a, I mean, it's a very slippery slope, I think, and it's difficult to kind of tease it out. But at the end of the day, physicians should not be seeing some of these diagnoses on a problem list and necessarily changing how they address a patient when they're in front of them, right?

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So someone who presents with right lower quadrant pain, that's the lower right side of the abdomen, and they have fibromyalgia or chronic fatigue or any of those things, if they have point tenderness in the right lower quadrant with associated symptoms, you should be looking for appendicitis, right? It doesn't matter what the backstory is.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So someone who presents with right lower quadrant pain, that's the lower right side of the abdomen, and they have fibromyalgia or chronic fatigue or any of those things, if they have point tenderness in the right lower quadrant with associated symptoms, you should be looking for appendicitis, right? It doesn't matter what the backstory is.