Dr. Bex

So they're almost telling them, choose your story, like go back through and find only the papers that say what you want them to say. And I think that's inappropriate in the world of electronic medical records. The idea is we can see everything. All of them. And again, you may still come to the conclusion.

Right. And they say, you know, sometimes parents have to mislead medical professionals, but they harbored no intent of harming anybody. That doesn't compute to me.

Right. And they say, you know, sometimes parents have to mislead medical professionals, but they harbored no intent of harming anybody. That doesn't compute to me.

Right. And they say, you know, sometimes parents have to mislead medical professionals, but they harbored no intent of harming anybody. That doesn't compute to me.

I mean, again, I want to know the story. And if a parent is concerned, I want them to tell me what they're concerned about. I don't want them to make up a story to get me there, right? I want them to say, this is what happened. But I watched a movie where a kid had something very similar and he had a brain tumor. I'm scared, right?

I mean, again, I want to know the story. And if a parent is concerned, I want them to tell me what they're concerned about. I don't want them to make up a story to get me there, right? I want them to say, this is what happened. But I watched a movie where a kid had something very similar and he had a brain tumor. I'm scared, right?

I mean, again, I want to know the story. And if a parent is concerned, I want them to tell me what they're concerned about. I don't want them to make up a story to get me there, right? I want them to say, this is what happened. But I watched a movie where a kid had something very similar and he had a brain tumor. I'm scared, right?

Because I can have that conversation and maybe we can talk and I can come up with a way to explain why I think this situation is different. But at the end of the day, that parent... I can talk to and I feel like I'm not set up to already fail or to be told.

Because I can have that conversation and maybe we can talk and I can come up with a way to explain why I think this situation is different. But at the end of the day, that parent... I can talk to and I feel like I'm not set up to already fail or to be told.

Because I can have that conversation and maybe we can talk and I can come up with a way to explain why I think this situation is different. But at the end of the day, that parent... I can talk to and I feel like I'm not set up to already fail or to be told.

It says here, it says a parent may state to a Mito specialist that child is having seizures, but a subsequent conversation between the specialist and the neurologist indicates she's not. Or a patient may represent that the gastroenterologist instructed them to go off a medication when that was not the case.

It says here, it says a parent may state to a Mito specialist that child is having seizures, but a subsequent conversation between the specialist and the neurologist indicates she's not. Or a patient may represent that the gastroenterologist instructed them to go off a medication when that was not the case.

It says here, it says a parent may state to a Mito specialist that child is having seizures, but a subsequent conversation between the specialist and the neurologist indicates she's not. Or a patient may represent that the gastroenterologist instructed them to go off a medication when that was not the case.

Such misrepresentation is done with no intent to cause harm to themselves or their child, but it is misrepresentation nonetheless and has a strong impact on the family and the relationship with providers. And then these can come back to haunt you if you're ever accused of medical child abuse.

Such misrepresentation is done with no intent to cause harm to themselves or their child, but it is misrepresentation nonetheless and has a strong impact on the family and the relationship with providers. And then these can come back to haunt you if you're ever accused of medical child abuse.

Such misrepresentation is done with no intent to cause harm to themselves or their child, but it is misrepresentation nonetheless and has a strong impact on the family and the relationship with providers. And then these can come back to haunt you if you're ever accused of medical child abuse.

Like I said, I'm trying to put myself in the mindset of I really do have a child that was diagnosed with, let's say, Milos, one of the mitochondrial diseases that I do know a lot about, one of these genetic conditions. And I want help because I'm scared. And this is where I go.

Like I said, I'm trying to put myself in the mindset of I really do have a child that was diagnosed with, let's say, Milos, one of the mitochondrial diseases that I do know a lot about, one of these genetic conditions. And I want help because I'm scared. And this is where I go.

Like I said, I'm trying to put myself in the mindset of I really do have a child that was diagnosed with, let's say, Milos, one of the mitochondrial diseases that I do know a lot about, one of these genetic conditions. And I want help because I'm scared. And this is where I go.

Like, I just think it sets up the medical profession to already they're going to be doubting us and it's going to already impact that relationship. I mean, they right off the bat tell you who in the hospital is a mandated reporter. So, you know, to make sure you be careful.