Dr. David Fajgenbaum
๐ค SpeakerAppearances Over Time
Podcast Appearances
Yeah, I mean, he basically said, look, David, it's never been tried before.
It's probably not going to work.
But there's probably not too much downside or to your point, even if there is a downside, like I'm already going to die from this disease.
So like we should at least give it a shot.
But there was no data.
It hadn't been used in a human before with Castleman.
So like I can understand the hesitancy because like.
It could have turned things even worse, but it also, it was sort of my last-ditch effort to try to stay around.
What did he say afterwards when it worked?
It was sort of a test of time because I started feeling better.
My blood results started getting better.
It was clearly working early on, but I'd gotten better multiple times before, and then it came back within a year.
I sort of wasn't willing to get too excited.
I just sort of was like, all right, it's going to be a test of time, cautiously optimistic.
And I started taking it in January of 2014.
And Caitlin and I, our wedding day was May 24, 2014.
So it was like, am I going to make it to May 24?
It was sort of this countdown.
And we made it to May 24.
And my hair grew back just in time for wedding day because all the chemo.