Dr. David Fajgenbaum

How does...

How's it happen?

This is so important.

I mean, honestly, right now it happens very randomly and sporadically.

Like you publish a paper in a journal and you hope a doctor reads that journal, or you give a talk at a conference and hope the doctors are there.

It's very sporadic, but we're trying to fix that with every cure.

And I'll share an example that is actually also got a Nashville connection.

An amazing doctor named Chip Chambers had two kids born with a rare condition called data two syndrome.

DATA2 causes kids to start having strokes at very young ages, and they usually pass away in their teenage years because they've had hundreds of strokes.

It's horrible.

And about 15, almost 20 years ago, a doctor sort of randomly tried a drug in one of his patients with DATA2 because he thought the patient's

looked similar to another disease.

He was like, oh, I'll try this drug that I use in this disease for this one, because nothing's working for these kids.

And it worked really well for that first kid.

That kid stopped having strokes.

And the doctor gave it to a few more of his kids with this condition and he helped.

He was great with the patients he took care of, but the word never spread.

And so then Chip Chambers, you know, comes around.

He has two kids with data too.

And he learns about this doctor who's doing that.