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Dr. Joshua Ambar

šŸ‘¤ Speaker
81 total appearances

Appearances Over Time

Podcast Appearances

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

April is Autism Acceptance Month.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

But as the autistic people and families that I work with every day say, you know, every day is Autism Acceptance Day in my life.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

So I'm hoping that, you know, we can keep having these conversations even beyond April.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

I was diagnosed with what was then called Asperger's syndrome, coming up on 20 years ago now.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

So I have this whole shtick of, I don't do research per se, I do me-search, and if the rest of humanity benefits, all the better for it.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

It's very unique to the individual.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

There's a saying in the autism community, you've met one person with autism, you have met exactly one person with autism.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

We have found that a lot of our research often focuses on parents, on caregivers, on providers, and we have found that they often ignore the autistic person.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

at large.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

And that's not correct.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

Autistic individuals often have a lot to say about their care, about their goals, about what they want to do and what independent living means for them.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

And the research literature ignored that really until about 15 years ago when we started to realize that individuals with autism had a lot to say.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

They didn't have the tools to say it.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

Given the tools, the proper tools to communicate, they will have a lot to say about their care and about what their goals and objectives in life are.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

The top line takeaway is that you should interact with your son Mason.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

You should ask what he wants.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

Don't just let it be imposed by a system around them.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

Our school system, through various federal and state laws, rules, and regulations, focuses on what they feel the transition to adulthood should look like.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

This means some basic independent living skills.

Chasing Life
Autism Doesn’t End at Childhood. Here’s the Reality

This means how do we make sure that they can successfully graduate or otherwise separate from secondary education.

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