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Emily Felix

๐Ÿ‘ค Speaker
122 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
Living with Friedreich's Ataxia

Yeah, so I was diagnosed with pre-traumatic anorexia when I was 12 in my first year of secondary school.

The Claire Byrne Show
Living with Friedreich's Ataxia

So I suppose the symptoms of the condition only really started appearing in my last two years of primary school.

The Claire Byrne Show
Living with Friedreich's Ataxia

And they were very small at first, like poor coordination, unsteady on my feet.

The Claire Byrne Show
Living with Friedreich's Ataxia

just poor at sport and exhausted after simple activities like walking home from school or whatever.

The Claire Byrne Show
Living with Friedreich's Ataxia

And then it did.

The Claire Byrne Show
Living with Friedreich's Ataxia

It was getting worse and worse, I suppose.

The Claire Byrne Show
Living with Friedreich's Ataxia

And fatigue was becoming a bigger issue.

The Claire Byrne Show
Living with Friedreich's Ataxia

And I was coming home from school covered in bruises, unexplained bruises, really.

The Claire Byrne Show
Living with Friedreich's Ataxia

I couldn't remember what I had experienced.

The Claire Byrne Show
Living with Friedreich's Ataxia

Don't know if I had fallen or banked into things.

The Claire Byrne Show
Living with Friedreich's Ataxia

And we kind of, we then went to a private physio

The Claire Byrne Show
Living with Friedreich's Ataxia

And that followed by private OT, who both kind of stressed to my mum and my dad that, no, something is wrong here.

The Claire Byrne Show
Living with Friedreich's Ataxia

This isn't an ordinary case of just a clumsy child.

The Claire Byrne Show
Living with Friedreich's Ataxia

So I was then referred on to a paediatrician who...

The Claire Byrne Show
Living with Friedreich's Ataxia

She was very much of the view that I was just a clumsy child.

The Claire Byrne Show
Living with Friedreich's Ataxia

There was nothing more to that than I was a clumsy child.

The Claire Byrne Show
Living with Friedreich's Ataxia

I will always be a clumsy child.

The Claire Byrne Show
Living with Friedreich's Ataxia

But she referred me on to get a scan, an MRI of my brain, just to rule out a brain tumour.

The Claire Byrne Show
Living with Friedreich's Ataxia

So when that was ruled out, that I had no brain tumour,

The Claire Byrne Show
Living with Friedreich's Ataxia

then I was told, yeah, see, it's not brain tumour, you're just clumsy.

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