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Helen MacDonald

๐Ÿ‘ค Speaker
See mentions of this person in podcasts
1132 total appearances

Appearances Over Time

Podcast Appearances

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

But I guess they also have concerns in a usual care setting about their privacy and their confidentiality.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

So maybe this would be a useful story to tell that one of the reasons we can't do this at the moment is because we have all these

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

The other interesting thing that's come out is we know that routine clinical care for patients has been quite disruptive.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

But what about care for patients who are currently involved in ongoing research, particularly trials?

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

Because we've heard some reports that their experience has been disrupted and what are the implications for patients?

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

And I spoke to Henry Stowcroft earlier today, who's one of the BMJ's patient editors.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

He also works for Cancer Research UK and I caught up with him to give us a quick update.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

It was sad to hear from Henry about the trial disruption that might be facing particularly cancer patients.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

But on the PPI front now, as an optimist, I was quite hopeful to hear Henry say that it's not too late and patients and clinicians will hopefully find ways to discover each other and involve each other in their work.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

So in other words, Carl, you're saying you're debating whether if you're a researcher and you have this evidence, do you put your effort into helping the media to understand it because they are the channel of dissemination?

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

Or to some extent, do you look to other channels that just speak directly to patients or the public or whoever you think is your end user, for want of a better word?

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

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Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

Do you think it's a researcher's job, though, Carl, or do you think it's really showing that...

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

there's a role for communication or communicators in this, whether that's a journal's role, whether that's the media's role or some kind of person that doesn't exist.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

But isn't it a bit hard on researchers to say the type of person who is maybe a wonderful researcher, very good at methods and reporting in a particular style and language, maybe they're just not the right person to be doing that second part, which is saying, I'm going to tell you what,

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

this means, which is more perhaps about interpretation or laying it out in user-friendly formats.

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

Isn't it just asking researchers to be able to be illustrators, communicators, setting too high a bar?

Talk Evidence
Talk evidence covid-19 update - natural history of covid, include patients in guidelines

And goodbye from me.

Talk Evidence
Talk Evidence covid-19 update - lack of testing transparency, how to give good debate

Hi, Duncan.

Talk Evidence
Talk Evidence covid-19 update - lack of testing transparency, how to give good debate

That's really interesting you mentioned that, Carl, because one of the first things I wanted to come to in the podcast this week was around how can we better support people with non-COVID related problems to come forward when they need to.