Kayte Spector-Bagdady

It's a little complicated. So law enforcement is supposed to get some sort of access, some sort of court authorized access to require a genetic sample from somebody. And some states like Maryland have specifically outlawed law enforcement use of genetic data that have been collected under other auspices in this way. The law enforcement also has their own genetic database that they keep.

It's a little complicated. So law enforcement is supposed to get some sort of access, some sort of court authorized access to require a genetic sample from somebody. And some states like Maryland have specifically outlawed law enforcement use of genetic data that have been collected under other auspices in this way. The law enforcement also has their own genetic database that they keep.

And so you can imagine if you combine the law enforcement database that they keep along with some of this other information, it can be very identifying for people. And people can get very uncomfortable with that concept. People who are used to a lot of civil liberty protections against intrusive behavior from law enforcement.

And so you can imagine if you combine the law enforcement database that they keep along with some of this other information, it can be very identifying for people. And people can get very uncomfortable with that concept. People who are used to a lot of civil liberty protections against intrusive behavior from law enforcement.

So genetic testing is a wonderful thing. It's something that allows us to diagnose and predict certain health outcomes and associate diseases and disorders with certain genetic variation, such that we might be able to intervene with things that can help people before the problem starts, or we might be able to prepare people later for something that they're going to face.

So genetic testing is a wonderful thing. It's something that allows us to diagnose and predict certain health outcomes and associate diseases and disorders with certain genetic variation, such that we might be able to intervene with things that can help people before the problem starts, or we might be able to prepare people later for something that they're going to face.

I do genetic research myself. I think it's very promising. But also, we need to be considerate of the people that that genetic information comes from, and it's a balance. And actually, that's why GINA, or the Genetic Information Non-Discrimination Act, was passed in the first place.

I do genetic research myself. I think it's very promising. But also, we need to be considerate of the people that that genetic information comes from, and it's a balance. And actually, that's why GINA, or the Genetic Information Non-Discrimination Act, was passed in the first place.

to make sure that people felt comfortable taking a genetic test to help their health care by knowing that there were some protections against discrimination. So I think it's an incredibly promising field.

to make sure that people felt comfortable taking a genetic test to help their health care by knowing that there were some protections against discrimination. So I think it's an incredibly promising field.

Yeah, that's the amazing thing about science, right, is that we can't always anticipate the different things that we're going to be able to do with genetic data or other kinds of information in the future. So, for example, generative AI or generative artificial intelligence has been applied in genetics just recently and has made amazing progress recently.

Yeah, that's the amazing thing about science, right, is that we can't always anticipate the different things that we're going to be able to do with genetic data or other kinds of information in the future. So, for example, generative AI or generative artificial intelligence has been applied in genetics just recently and has made amazing progress recently.

because it can analyze massive amounts of data at the same time and start to associate variants and genes with health outcomes in ways that we never could have done before. But the fact that we also can't predict exactly how people are going to use genetic data in the future also makes it hard to make sure people are consenting and fully understand what's going on.

because it can analyze massive amounts of data at the same time and start to associate variants and genes with health outcomes in ways that we never could have done before. But the fact that we also can't predict exactly how people are going to use genetic data in the future also makes it hard to make sure people are consenting and fully understand what's going on.

So I had also used 23andMe in the past, mostly because I teach about it. And so I wanted to know more about how the system worked. And so I did go in and delete my own genetic information. I think that people can do that right now. And 23andMe is honoring it as best they can.

So I had also used 23andMe in the past, mostly because I teach about it. And so I wanted to know more about how the system worked. And so I did go in and delete my own genetic information. I think that people can do that right now. And 23andMe is honoring it as best they can.

But I guess my big warning would be for the future, when people are putting private information, health information, as you said in the beginning, dating profile information, any sort of data, those data are valuable to more people than just yourself. And every time you're putting it into a commercial platform, it is not protected by our health privacy laws.

But I guess my big warning would be for the future, when people are putting private information, health information, as you said in the beginning, dating profile information, any sort of data, those data are valuable to more people than just yourself. And every time you're putting it into a commercial platform, it is not protected by our health privacy laws.

And I don't think that people really understand that. So anytime a commercial platform is asking you personal questions like, when did you get your last period? Or how much alcohol do you drink? I would like people to be really cautious moving forward about what they're actually doing with that information.

And I don't think that people really understand that. So anytime a commercial platform is asking you personal questions like, when did you get your last period? Or how much alcohol do you drink? I would like people to be really cautious moving forward about what they're actually doing with that information.