Lulu Miller

Started a book club of two.

Collaborate on work together.

And then, if you have any notes... She performed this essay for us about how she has muscular dystrophy, how she uses a ventilator to breathe.

Yeah.

Which has given her this very distinct voice.

Which she uses to fight for disability rights and to shine light on disabled writers and artists, inventors.

The world is ours.

And this is for all of us.

Anyway, so that's Alice.

And then in the summer of 2022, I saw that she had posted this photo of herself online.

She was in a hospital bed with all kinds of tubes and wires coming out of her, and she did not look well.

She had a caption about how she was in the ICU, and then she just went dark.

And it wasn't until a few months later that I finally heard from her.

Oh, Alice, it is so good to see your face.

How are you doing?

Like, are you hurting right now?

It turned out she had had to have a tracheostomy.

Basically, she'd had a lung infection that was so serious, to allow her to breathe, they had to cut straight into her windpipe and insert a tube.

Right, where you're like on a ventilator.

Yeah, and she's on a ventilator.