Maria Delaney

And then you have to pick up yourself and you have to have all this energy to try and campaign, go on the radio and everything while also trying to live your life and get on with things.

So it's just huge on families and on patients.

And it's not something that people should have to put themselves through again and again.

And often for years, like the campaign that we were involved in went on for 20 years.

And people died while they were doing it.

It was huge.

So it's just not something that people should have to give up parts of their life to do.

Oh, totally.

Like it's very difficult for people.

And I suppose whenever I'm interviewing people now on the other side of the mic...

I'm always really conscious and also, like, I learn the language we use around, like, the whole, like, kind of labelling people as their condition and stuff and not kind of showing what other kind of aspects of their lives are.

So, like, it's all this kind of pigeonholing of people and kind of labelling them as, oh, this is what they're doing, this is their life.

And what they're doing is, like, living their life and then taking a break out of their life to try and campaign and to actually live more life.

So that's the issue.

All right.

Yeah, well, I live in Donegal, so this would be extremely difficult to enforce.

I think people would just have no social lives because they'd have to get their parents to pick them up at 3am to go out and stuff like that.

So as I didn't grow up there, I grew up, actually, I went to the same school as Cintia Nibirke, so I was kind of surprised that, like, because she's kind of probably would have had to drive into town to go...

places when she was young and stuff like that.

Like one of the things actually that benefited me was I didn't drink.