Meg Loney

And then ultimately we went the surgical route. So they found a small piece of her brain that hadn't fully developed or developed properly. And they were like, hey, we think if we remove this part of her brain that it will stop the seizures. Whoa. And at that point we had gotten to, she was getting rescue meds like once a week.

So she was having seizures lasting longer than five minutes that required some extra medicine to stop them. So at that point we were kind of like, we gave it to God. We said, we know that we've been praying for answers and you've presented this one. So we started down the surgical route. And at that time we applied with Make-A-Wish Middle Tennessee and which is just an extraordinary organization.

So she was having seizures lasting longer than five minutes that required some extra medicine to stop them. So at that point we were kind of like, we gave it to God. We said, we know that we've been praying for answers and you've presented this one. So we started down the surgical route. And at that time we applied with Make-A-Wish Middle Tennessee and which is just an extraordinary organization.

So she was having seizures lasting longer than five minutes that required some extra medicine to stop them. So at that point we were kind of like, we gave it to God. We said, we know that we've been praying for answers and you've presented this one. So we started down the surgical route. And at that time we applied with Make-A-Wish Middle Tennessee and which is just an extraordinary organization.

They worked with us to find the best wish for Tilly to have. And so then she had her surgery in October, October 18th. And then in April of 2024, we were able to go on this amazing trip to Disney World and so much more. So they covered, they picked us up in a limo. They covered our flights. They got us a rental car.

They worked with us to find the best wish for Tilly to have. And so then she had her surgery in October, October 18th. And then in April of 2024, we were able to go on this amazing trip to Disney World and so much more. So they covered, they picked us up in a limo. They covered our flights. They got us a rental car.

They worked with us to find the best wish for Tilly to have. And so then she had her surgery in October, October 18th. And then in April of 2024, we were able to go on this amazing trip to Disney World and so much more. So they covered, they picked us up in a limo. They covered our flights. They got us a rental car.

They have an amazing resort called Give Kids the World Resort, which is only for wish families. Wow. It is like a small apartment. There were two rooms. Tilly's room had the bathroom connected to it. And Justin and I actually had to like leave to go use the bathroom.

They have an amazing resort called Give Kids the World Resort, which is only for wish families. Wow. It is like a small apartment. There were two rooms. Tilly's room had the bathroom connected to it. And Justin and I actually had to like leave to go use the bathroom.

They have an amazing resort called Give Kids the World Resort, which is only for wish families. Wow. It is like a small apartment. There were two rooms. Tilly's room had the bathroom connected to it. And Justin and I actually had to like leave to go use the bathroom.

Right. She had like the owner's suite.

Right. She had like the owner's suite.

Right. She had like the owner's suite.

They provided meals at the resort and they have rides and a pool. So it's everything in a resort you could want. And then they give you tickets to Disney World with the Fast Pass or whatever it's called now. So we got to skip the line. Tilly went on her favorite ride, Slinky Dog Dash, three times in a row because they're like, yeah, just go back on it.

They provided meals at the resort and they have rides and a pool. So it's everything in a resort you could want. And then they give you tickets to Disney World with the Fast Pass or whatever it's called now. So we got to skip the line. Tilly went on her favorite ride, Slinky Dog Dash, three times in a row because they're like, yeah, just go back on it.

They provided meals at the resort and they have rides and a pool. So it's everything in a resort you could want. And then they give you tickets to Disney World with the Fast Pass or whatever it's called now. So we got to skip the line. Tilly went on her favorite ride, Slinky Dog Dash, three times in a row because they're like, yeah, just go back on it.

Um, we went to universal studios and she had a blast and they give you a debit card so that you can buy meals at the parks. You can buy souvenirs. It was just,

Um, we went to universal studios and she had a blast and they give you a debit card so that you can buy meals at the parks. You can buy souvenirs. It was just,

Um, we went to universal studios and she had a blast and they give you a debit card so that you can buy meals at the parks. You can buy souvenirs. It was just,

bigger than we could have ever imagined like even starting with like dreaming with them it was bigger than we could have even imagined um and it was just an amazing way to kind of cap off that journey um so because of today as of today she is 14 months seizure free yay praise god that's amazing wow she's clapping too which i love that says yeah amen everybody clap so uh