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Pádraig O'Sullivan

👤 Speaker
85 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

So when people often comment that it's OK for Germany and France and the bigger economies to approve things faster because they have a bigger population, more resources, it doesn't stack up that we're behind all those similar sized countries.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

I'm not here to throw digs at Michael Barry or the NCP, but on another station recently, he did say a bigger budget doesn't necessarily mean better value.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Okay, so he's a very difficult job.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

He does have a limited budget, but we need to factor in, and this is probably a decision for the Minister and wider government,

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Cumulatively, pharmaceutical industry here pays the bones of 8 to 10 billion depending on the year on corporation tax.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

That's a massive amount of money.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

There's anywhere up to 75,000 jobs dependent on the industry.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

If people aren't going to listen to the health motivation on this thing, if they're not going to try and reach out to these families that are crying out for these medicines.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

maybe they listen to the industry and the jobs and the investment and the innovation that's required.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

The real problem we have here is there's so much innovation, there's so many new drugs, like basically every new cancer drug that's been discovered is so targeted.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

In essence, it's a rare disease drug.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

It needs to reform.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

He's meeting on Monday in Cork.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Okay.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

So where is this going to go?

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Well, what I'm asking, not just the Taoiseach, but what I'm asking the drugs group, because ultimately the recommendation that the NCP will make will go to the drugs group and they are meeting sometime in the middle of June.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

I would be asking that this drug, as well as a few others, they'll have an agenda, would be considered as urgently at that meeting.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And if not June, then at very least the next meeting, which might possibly be July or August.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

There's more and more resources gone into this area in the last few years, to be fair.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

For the first time in...