Richard Scolyer

It doesn't prove that it's effective, but it gives hope and it's more of a driver that this is something that's worth exploring ultimately in a clinical trial.

Yeah, well, to be honest, Sarah, that's been the toughest part of the journey, not the conversations with Katie, but the emotional aspects of how it's affected my life and, you know, what things I can and can't do and various other things.

But maybe part of it's my emotions have been changed by what's happened.

But

The conversations have changed over time.

Obviously initially when it was first diagnosed and I cared for my family and trying to get issues sorted out to help Katie and the family when I was not going to be around for her.

The kids were still reliant on us to be able to

help them get through life.

Um, yeah, those sorts of things and, and then, then all the emotional journeys were, were much harder and so initially it was practical stuff but then the emotional journey of luckily not being here and,

I think about my own experiences when I was a kid and my mum and dad would ask me to come up from Hobart to visit them in Launceston for the weekends.

And I'd say, hey, that's too far to go for a weekend.

And my kids have been very kind and spent a lot more time with me than I would have spent with my parents when I was about the same age.

I always had this idea from my memory.

I grew apart from my parents when I first moved away and then...

towards the end of uni became closer to them again and felt like perhaps i'd miss out on that and obviously the the journey of well anger that you well maybe that's not the right word but disappointment sadness that your that your life's been been turned upside down and um

Yeah, there was... Perhaps in general, maybe other people would say something different, but I think of myself often as being relaxed about a lot of things and picking the battles that I think are worth taking on.

And maybe I'm patting myself on the back too much, but when this happened, I didn't... Initially, I was not...

I wouldn't wait around for things.

They need to be sort of that pronto.

Whatever it was, there was a...