Sandra Matz
๐ค SpeakerAppearances Over Time
Podcast Appearances
There, I think what we need, again, coming back to this notion of control, is to have a support system that allows you to exercise your control wisely. And what I mean by that specifically is that there's these forms of governing your data that's in the context of data co-ops and data trusts. So the idea is that instead of having to manage it all by yourself, you actually get together.
There, I think what we need, again, coming back to this notion of control, is to have a support system that allows you to exercise your control wisely. And what I mean by that specifically is that there's these forms of governing your data that's in the context of data co-ops and data trusts. So the idea is that instead of having to manage it all by yourself, you actually get together.
There, I think what we need, again, coming back to this notion of control, is to have a support system that allows you to exercise your control wisely. And what I mean by that specifically is that there's these forms of governing your data that's in the context of data co-ops and data trusts. So the idea is that instead of having to manage it all by yourself, you actually get together.
And now we're coming back to this notion of community and connection. You get together a group of people who are willing to share their data. and who come together to manage it for their own benefit. So just to give you an example that I really like, healthcare is one of these, right?
And now we're coming back to this notion of community and connection. You get together a group of people who are willing to share their data. and who come together to manage it for their own benefit. So just to give you an example that I really like, healthcare is one of these, right?
And now we're coming back to this notion of community and connection. You get together a group of people who are willing to share their data. and who come together to manage it for their own benefit. So just to give you an example that I really like, healthcare is one of these, right?
So there's a lot of rare diseases, for example, that are poorly understood because to understand it, you need data from a lot of people and all pooling it in the same place, ideally as much as you can in terms of like your genetics, your medical history, your lifestyle, your nutritional choices. If we had all of this from everybody in the world in one place,
So there's a lot of rare diseases, for example, that are poorly understood because to understand it, you need data from a lot of people and all pooling it in the same place, ideally as much as you can in terms of like your genetics, your medical history, your lifestyle, your nutritional choices. If we had all of this from everybody in the world in one place,
So there's a lot of rare diseases, for example, that are poorly understood because to understand it, you need data from a lot of people and all pooling it in the same place, ideally as much as you can in terms of like your genetics, your medical history, your lifestyle, your nutritional choices. If we had all of this from everybody in the world in one place,
we could understand disease much better we could understand treatment much better because we can now see okay here's the treatment that works for person x but not for person y why is that what else could we do for them and but it's like a pretty big ask to have this in a central server without giving it to pharma companies right but if you could have a community of people
we could understand disease much better we could understand treatment much better because we can now see okay here's the treatment that works for person x but not for person y why is that what else could we do for them and but it's like a pretty big ask to have this in a central server without giving it to pharma companies right but if you could have a community of people
we could understand disease much better we could understand treatment much better because we can now see okay here's the treatment that works for person x but not for person y why is that what else could we do for them and but it's like a pretty big ask to have this in a central server without giving it to pharma companies right but if you could have a community of people
let's say people suffering from MS, which is actually a real example in Switzerland, a data corp in Switzerland that exists. They just get MS people to share, people suffering from MS to share all of their data. Now they can generate insights that are much, much better than anything that you could do by yourself, right?
let's say people suffering from MS, which is actually a real example in Switzerland, a data corp in Switzerland that exists. They just get MS people to share, people suffering from MS to share all of their data. Now they can generate insights that are much, much better than anything that you could do by yourself, right?
let's say people suffering from MS, which is actually a real example in Switzerland, a data corp in Switzerland that exists. They just get MS people to share, people suffering from MS to share all of their data. Now they can generate insights that are much, much better than anything that you could do by yourself, right?
If you're only one person, there's only so much you can learn from your genetic data. And so they generate insights generally about the disease, but they also then use it to benefit you directly. So if you're part of the data corp, it's called MyData.
If you're only one person, there's only so much you can learn from your genetic data. And so they generate insights generally about the disease, but they also then use it to benefit you directly. So if you're part of the data corp, it's called MyData.
If you're only one person, there's only so much you can learn from your genetic data. And so they generate insights generally about the disease, but they also then use it to benefit you directly. So if you're part of the data corp, it's called MyData.
If you're part of the data co-op and you share your, again, genetic data, healthcare data, and so on, you get like personalized recommendations that are sent to your doctor in the hospital of like, here's treatments that might work particularly well for you. Here's something that you could do to help with your symptoms. And that's a totally different way of giving control to people, right?
If you're part of the data co-op and you share your, again, genetic data, healthcare data, and so on, you get like personalized recommendations that are sent to your doctor in the hospital of like, here's treatments that might work particularly well for you. Here's something that you could do to help with your symptoms. And that's a totally different way of giving control to people, right?