Sarah Wildman
๐ค SpeakerAppearances Over Time
Podcast Appearances
But it turned out the type of cancer that Orly had, hepatoblastoma, which is typically seen in toddlers, does not have a good cure rate for children who are older. They do very well under the age of three. And then older children, Orly was 10 at diagnosis, they don't tend to survive.
It's hard to say. I think there are a couple different stages that I would have liked, a different type of conversation. For example, in the spring of 2022, when Orly was feeling really good, she had metastasis to her lung. And we asked if we could travel before she had another surgery. It was to be her third lung surgery. And the lung surgeries were very, very painful.
It's hard to say. I think there are a couple different stages that I would have liked, a different type of conversation. For example, in the spring of 2022, when Orly was feeling really good, she had metastasis to her lung. And we asked if we could travel before she had another surgery. It was to be her third lung surgery. And the lung surgeries were very, very painful.
It's hard to say. I think there are a couple different stages that I would have liked, a different type of conversation. For example, in the spring of 2022, when Orly was feeling really good, she had metastasis to her lung. And we asked if we could travel before she had another surgery. It was to be her third lung surgery. And the lung surgeries were very, very painful.
And then we were beginning an experimental treatment. And at that time, actually, she was doing really well. And they were concerned to wait, but they didn't say to us, well, there's a new calculation here, which is to say you're facing a third metastasis. We don't know if delaying surgery will affect our ability to get on top of this cancer. They weren't yet talking about it being incurable.
And then we were beginning an experimental treatment. And at that time, actually, she was doing really well. And they were concerned to wait, but they didn't say to us, well, there's a new calculation here, which is to say you're facing a third metastasis. We don't know if delaying surgery will affect our ability to get on top of this cancer. They weren't yet talking about it being incurable.
And then we were beginning an experimental treatment. And at that time, actually, she was doing really well. And they were concerned to wait, but they didn't say to us, well, there's a new calculation here, which is to say you're facing a third metastasis. We don't know if delaying surgery will affect our ability to get on top of this cancer. They weren't yet talking about it being incurable.
Instead, they said, we should make sure we do everything we can. And what I would have preferred was to say, let's let her travel. Let's let her do something while she's doing well. Because I actually think they knew then the trajectory wasn't great. And I think there's a way to do that that still allows for hope. Orly's cancer metastasized to her brain in June. And Ian asked providers...
Instead, they said, we should make sure we do everything we can. And what I would have preferred was to say, let's let her travel. Let's let her do something while she's doing well. Because I actually think they knew then the trajectory wasn't great. And I think there's a way to do that that still allows for hope. Orly's cancer metastasized to her brain in June. And Ian asked providers...
Instead, they said, we should make sure we do everything we can. And what I would have preferred was to say, let's let her travel. Let's let her do something while she's doing well. Because I actually think they knew then the trajectory wasn't great. And I think there's a way to do that that still allows for hope. Orly's cancer metastasized to her brain in June. And Ian asked providers...
Does this mean she'll die? People really were reluctant to answer that question. And I was reluctant to hear it. So I think to your question, if they'd given it out in small doses, what they could have said was... This is resetting the table. She won't outrun this. We don't know how much time we have. What are the things you want to do?
Does this mean she'll die? People really were reluctant to answer that question. And I was reluctant to hear it. So I think to your question, if they'd given it out in small doses, what they could have said was... This is resetting the table. She won't outrun this. We don't know how much time we have. What are the things you want to do?
Does this mean she'll die? People really were reluctant to answer that question. And I was reluctant to hear it. So I think to your question, if they'd given it out in small doses, what they could have said was... This is resetting the table. She won't outrun this. We don't know how much time we have. What are the things you want to do?
If they'd started to say that when she was still able to do more things, it would have been terrifying. And I think it's part of the reason why it's really hard to have those conversations.
If they'd started to say that when she was still able to do more things, it would have been terrifying. And I think it's part of the reason why it's really hard to have those conversations.
If they'd started to say that when she was still able to do more things, it would have been terrifying. And I think it's part of the reason why it's really hard to have those conversations.
Yes, I think hope can be a form of denial. It can also be a motivating force. It can mean that you do seek out treatments that do give you days, months, maybe even years. I think that the hope is essential because... Cancer care is grueling. It can be demoralizing to face the consequences of cancer care. The cancer care itself comes with pain. It comes with nausea.
Yes, I think hope can be a form of denial. It can also be a motivating force. It can mean that you do seek out treatments that do give you days, months, maybe even years. I think that the hope is essential because... Cancer care is grueling. It can be demoralizing to face the consequences of cancer care. The cancer care itself comes with pain. It comes with nausea.
Yes, I think hope can be a form of denial. It can also be a motivating force. It can mean that you do seek out treatments that do give you days, months, maybe even years. I think that the hope is essential because... Cancer care is grueling. It can be demoralizing to face the consequences of cancer care. The cancer care itself comes with pain. It comes with nausea.
It comes with, obviously, hair loss. It can come with all sorts of indignities. It must be so hard to watch as a parent. It was brutal because she really tried to live each moment in such an enormous way. She really, really loved living. And she would try to make life different in the hospital. I mean, she... made every single nurse do TikTok dances with her.