Stephen Lannen

But, you know, you can't take your eyes off her for a second because you can't swallow it.

And she's obviously, you have to lift her in and out of her chair.

You know, everything is done for her.

But, you know, we have nurses coming in and out of the house and so on.

So we are well helped.

It's difficult to manage, as I'm sure Jonathan as well knows there.

But she is, you know, I suppose we are where we are.

It's not really, you know, it's like saying the grass is green.

Yeah, she goes to school every day with a nurse and an SNA.

But, you know, you just have to, you can't take your eyes off her because of not being able to swallow.

So if she had had a heel break test and then she didn't lose her swallow, she lost her swallow at about six months.

She was still breastfeeding and so on.

So if she had kept her swallow, even that alone would make such a difference in terms of care because, you know, you can't take your eye off her for a second.

So, yeah, it just would have made such a difference.

Yeah.

We are where we are.

But yeah, so she can't swallow, she can't really cough, so she gets a lot of chest infections.

She spends a fair bit of time in Tempo Street.

Now, she's a bit better the last couple of years, but you just have to watch her like a hawk all day long.

And if she's literally on the other side of the room, I'll be always calling, Nelly, are you okay?