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Beyond the Count

ITP & Me: Creating a book for Teens, by Teens

10 Sep 2025

Description

Behind the scenes of a project giving teenagers a voice in their ITP journey.Being diagnosed with ITP as a teenager can feel overwhelming, and finding the right information at the right time makes a big difference. In this episode, Danielle speaks with Professor Nichola Cooper, Dr Alice Hart, and Mervyn Morgan about ITP and Me: A Teen Guide to Living with ITP.They share how the book was developed with teens, for teens, why age-appropriate resources matter, and how hearing directly from young people has helped shape a resource that is both practical and reassuring. Whether you’re a teen, a parent, or part of a healthcare team, this conversation highlights the impact of collaboration and the importance of giving young people a voice in their care.Support the showThanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au. 📱 Follow us on social media:Instagram: @ITP_ANZFacebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New ZealandYouTube: @ITPANZ 🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]

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