Beyond Discharge: Stories from the NICU with Fabiana Bacchini

What happens when personal trauma transforms into powerful advocacy? Fabiana Bacchini, Executive Director of the Canadian Premature Babies Foundation, takes us on a journey through her evolution from NICU parent to healthcare changemaker through the lens of digital storytelling.The conversation reveals the unique power of digital stories to transcend traditional limitations. Unlike presentations that exist in one moment for one audience, digital stories live online, cross borders, translate across languages, and remain relevant for years. They protect storytellers from repeatedly reliving trauma while maximizing impact and creating space for multiple perspectives – including those of siblings and patients themselves.Whether you're a healthcare professional seeking to understand patient experiences, a parent navigating your own medical journey, or an advocate looking for powerful tools to drive change, this episode illuminates how personal narratives can reshape healthcare from the inside out. Listen now to discover how digital storytelling is revolutionizing patient advocacy and transforming healthcare one story at a time.Key MessagesDigital stories have unique power to convey the emotional reality of NICU experiencesFabiana's own story begins with performing CPR on her son when "no one came" after calling for helpFamily integrated care research empowered her as a parent and improved her son's outcomesDigital stories reach audiences beyond conference rooms and remain impactful over timeParent stories consistently receive the highest ratings in conference evaluationsCreating opportunities for siblings and patients to tell their own stories offers valuable perspectivesDigital storytelling allows advocates to share impactful experiences without repeatedly reliving traumaOther Links MentionedWatch Fabiana's digital storyWatch Petya's story from CPBF's launch event Building Resilience TogetherWatch Alice's story from CPBF's Preemie Chat: The Importance of Sharing your StoryRead this episode's blog postWatch the Looking Back video about Ep 26 with Dr. Peter RosenbaumLearn more about Fabiana Bacchini here. Hosted on Acast. See acast.com/privacy for more information.

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