Bridging Lived Experience, Storytelling & Advocacy

A preemie parent and digital storytelling facilitator, who just happens to also host the Co-Created podcast, Kristy Wolfe, shares how a simple bedtime ritual became a lens for resilience, advocacy, and neurodevelopmental care, weaving Congenital Heart Disease (CHD) and Neonatal Intensive Care Unit (NICU) experience into digital stories that move clinicians and empower families. We show how short films, crafted with consent and care, can change practice, spark equity conversations, and help kids speak for themselves.Episode Key Messageswhy stories carry what data cannothow a two to four minute digital story influences conferences and policyKane’s voice on pacemakers, echocardiograms and hospital Lego reflection prompts for clinicians to change practiceconsent and whose story gets toldthe four-phase Common Language digital storytelling methodprocess versus product goals in advocacy and educationreadiness, emotional safety and caregiver well-beingpractical ways to bring neurodevelopmental care into daily lifeOther Links MentionedWatch the full Preemie Chat episodeWatch Hugs & BugsWatch Kane's StoryRead this episode's blog postLearn more about Canadian Premature Babies Foundation's Preemie ChatsAbout Our Guest (aka the Co-Created host!)Kristy Wolfe is a digital storytelling facilitator and owner of Kristy Wolfe Stories. She believes there is beauty in every story and she champions real stories in marketing and communication. Kristy exposes the human side of any organization, with consideration for ethics in storytelling, as well as storyteller wellness every step of the way. As a Common Language DST certified facilitator and trainer, Kristy helps individuals and social purpose organizations share meaningful stories, turning their unique experiences into compelling narratives that inspire action. Kristy shares some of her own lived experiences within the context of each workshop she facilitates to validate that authenticity, openness, and vulnerability are essential to creating meaningful digital stories.Fabiana Bacchini is the Executive Director of the Canadian Premature Babies Foundation. She is a journalist and the published author of From Surviving to Thriving, a Mother’s Journey Through Infertility, Loss and Miracles. Hosted on Acast. See acast.com/privacy for more information.

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