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Disrupting Innovation

Empowering Patients, Revolutionizing Research: Long COVID's Journey with The Patient-Led Research Collaborative

16 Jun 2023

Description

In this captivating episode of "Disrupting Innovation," we dive into the remarkable work of The Patient-Led Research Collaborative, a group of Long COVID patients who are also dedicated, researchers. These incredible individuals bring a unique blend of expertise in biomedical research, participatory research, neuroscience, cognitive science, public policy, machine learning, human-centered design, and health activism. Discover how they are facilitating patient-led and patient-involved research into Long COVID and associated conditions, all while upholding rigorous research methodologies. We delve into their mission to advocate for policies that empower marginalized patients, ensuring access to care and the ability to live with dignity. Grounded in principles of disability justice and participatory research methods, The Patient-Led Research Collaborative demonstrates the power of lived experience in identifying research questions and driving innovative solutions.

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