Endo Year Reflections: Ep #4 When Pain Meets Community, Misinformation Loses

Send us a text with a question or thought on this episode ( We cannot replay from this link)Pain that makes you faint is not “just periods,” and “just get pregnant” isn’t a plan—it’s a myth. We open the Endo Year Reflection series with a clear-eyed look back at the stories and science that reshape care for endometriosis and chronic pelvic pain. You’ll hear how harmful narratives spread, why they stick, and what actually helps when you’re stuck between dismissal and a diagnosis that takes too long to arrive.Fisayo’s journey lays bare how predictably timed fainting, ER visits, and back pain were waved away for years—even with a physician in the family. Naming endometriosis became a turning point, and her documentary Walking Through Walls transforms private suffering into public advocacy. Nikki’s path mirrors what so many endure: repeated ER trips, migraines tied to cycles, sports and school sacrificed, and well-meaning but wrong answers. Excision surgery changed her trajectory, but honest talk about fertility loss and the quiet grief of parenting through pain offers the validation many have been missing.We also reflect on getting curious about the mechanics of cramps. Why do some cycles feel manageable while others become “death cramps”? With a nod to the GYRL lab’s research and Kate Helen Downey’s blend of humor and rigor from the podcast Cramped, we explore dysmenorrhea, prostaglandins, and why basic questions about menstrual pain still lack basic answers. Then we get practical: a holiday survival kit with meds, heating pads, safe snacks, and comfort items; travel pacing; and boundaries that protect your energy without apology. Stories matter, accuracy matters, and community matters—because none of us should navigate this alone.Take one idea from this conversation and let it sit. If it helps, share this episode with someone who needs better information or a reminder that they aren’t imagining it. Subscribe, leave a review, and tell us the biggest myth you want gone for good.Support the showWebsite endobattery.com Instagram: EndoBattery

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