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From The Heart: The HeartKids Podcast

Society & Culture Health & Fitness Kids & Family

Activity Overview

Episode publication activity over the past year

Episodes

100 Episodes of From the Heart: Stories, Lessons and What’s Next

12 Dec 2025

Contributed by Lukas

This special 100th episode brings Sammy and Rachel together to revisit the moments, people and insights that have defined From the Heart. They explore...

Navigating Life and Health: Brodie’s Journey Through Two Heart Transplants

22 Nov 2025

Contributed by Lukas

In this episode of the HeartKids Podcast, host Rachel Knowles speaks with 20-year-old Brodie and his mum, Annie, from Tasmania. Brodie has lived with ...

Tanya Hall from Hearts4heart: The Power of the Patient Voice

08 Nov 2025

Contributed by Lukas

Tanya Hall, CEO and founder of Hearts4heart and member of the World Heart Federation Board, joins us to share how lived experience can reshape care, p...

Shaping Better Care Through Education with Mark Edmonds

22 Oct 2025

Contributed by Lukas

In this episode, host Sami Glastonbury speaks with Mark Edmonds, Education Project Coordinator at HeartKids, about the power of co-design and educatio...

Supporting Heart Families in WA and Beyond with Natasha D'Souza

04 Oct 2025

Contributed by Lukas

In this episode, host Sami is joined by Natasha D'Souza, one of our dedicated Family Support Coordinators in Western Australia. Drawing on her o...

CHD, RHD and Cultural Identity with Heart Mum Maria Tass

20 Sep 2025

Contributed by Lukas

In this episode of From The Heart, Angela Webb, our Aboriginal and Torres Strait Islander Community Engagement Manager, speaks with Maria Tass and her...

Fontan Surgery, ANZFAC and Lived Experience with Jonathan Mackley

04 Sep 2025

Contributed by Lukas

In this episode of From the Heart, Jonathan Mackley shares his journey from being born with a complex heart condition and undergoing one of the earlie...

Hugo and Louise Taheny: Sport, Advocacy and Life with CHD and Down Syndrome

21 Aug 2025

Contributed by Lukas

In this episode of From the Heart, host Sami Glastonbury speaks with world champion athlete and health ambassador Hugo Taheny and his mum, Louise. Hug...

Inside Paediatric Heart Surgery with Dr Stephanie Perrier

07 Aug 2025

Contributed by Lukas

In this episode of From the Heart, host Sami Glastonbury sits down with Dr Stephanie Perrier, Paediatric and Congenital Cardiac Surgeon at the Royal C...

Feeding and Speech Development with Speech Therapist Emily Hayes

24 Jul 2025

Contributed by Lukas

In this episode of From The Heart Sami chats with Emily Hayes, a speech pathologist and feeding specialist who works closely with babies and young chi...

23 Surgeries Before 23 with Annabel Turner

10 Jul 2025

Contributed by Lukas

In this episode of 'From The Heart', our host Rachael chats to Annabel Turner - a young heart adult who has tricuspid artresia. Listen as Ra...

Sexual Health and Wellbeing with Sexologist Stacey Micallef

28 Jun 2025

Contributed by Lukas

In this episode of 'From The Heart', our host Rachael chats to Stacey Micallef - a sexologist and relationship & trauma counsellor based...

Medical Trauma with clinical psychologist Carlye Crank

11 Jun 2025

Contributed by Lukas

In this episode of 'From The Heart', our host Rachael chats to clinical psychologist Carlye Crank about mental health, medical trauma and th...

RHD and Better Community Care with Tanika Parker and Genavie Tabuai

30 May 2025

Contributed by Lukas

In this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a y...

Mitch McGovern: An Ambassador in Honour of his Friend's Memory

15 Apr 2025

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Mitch McGovern.Mitch is a football player with Carlton, an...

Acknowledging and Supporting the Sibling Journey - Dr Shannon Schedlich of Siblings Australia

01 Apr 2025

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Dr Shannon Schedlich.Shannon joins the podcast this episod...

Curtis McGrath: Paralympian, Soldier, Order of Australia Recipient, and Heart Dad

18 Mar 2025

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Curtis McGrath.Curtis is an Australian Paralympic gold med...

Managing my Complex CHD... Mahan Ahmadiram's Story

04 Mar 2025

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Mahan Ahmadiram, an adult navigating her life with CHD, wi...

A Grandparent's Care... Cindy Hutchison's Story

18 Feb 2025

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Cindy Hutchison.Cindy and Sami chat about Cindy's ext...

Supporting the Sibling... Chloe Peck's Heart Sibling Journey.

04 Feb 2025

Contributed by Lukas

Welcome to From the Heart: The HeartKids Podcast, Season 4.In this episode of "From the Heart," join our host, Sami, for a conversation with...

From the Heart: 2024 Wrapped. Erin Ferguson and Happy Heart Clinic

21 Jan 2025

Contributed by Lukas

Welcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and into 2025, we're bringing you some fan favourite episodes of From the Hear...

From the Heart: 2024 Wrapped. Danielle Green's Story

07 Jan 2025

Contributed by Lukas

Welcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and looking into 2025, we're bringing you some fan favourite episodes of From ...

From the Heart: 2024 Wrapped. Amber Adamson: Ask a Nurse Anything!

24 Dec 2024

Contributed by Lukas

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, s...

From the Heart: 2024 Wrapped. Kate Strickland's Story

10 Dec 2024

Contributed by Lukas

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, s...

From the Heart: 2024 Wrapped. Elijah Hill's Story

26 Nov 2024

Contributed by Lukas

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, s...

Navigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life Updates

12 Nov 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer,  Mel.Mel and Sami chat about S...

Supporting a Heart Kid, to a Heart Teen... Amy Heafield's Story

29 Oct 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.Many families who have spent time at the Roya...

Life as an Adult with CHD... Jaden Dixon's Story

15 Oct 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon.Jaden is a 29-year-old from Brisbane who wa...

The Complete Race Driver... Wes McDougall's journey with Tetralogy of Fallot

01 Oct 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Wes McDougall.Wes is a heart adult, who has a stunning car...

My CHD Journey: Audrey Keillor

17 Sep 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Rachael, for a conversation with Audrey Keillor.Audrey is a 19-year-old heart adult, who...

PPA2: Rare Genetic Conditions - Danielle Green's Story

27 Aug 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonn...

Child Life Therapy and CoHD: Kate Strickland

13 Aug 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Kate Strickland. Kate is a Child Life Therapist, who works...

Health, happiness and connection: Emma Psaros CHD journey

30 Jul 2024

Contributed by Lukas

In this episode of From the Heart, host Rachael chats with Emma Psaros, a 25-year-old who has grown up with congenital heart disease (CHD). Emma share...

Growth and Resilience Through the Journey: Laura Achilles' Adult CHD Story

15 Jul 2024

Contributed by Lukas

In this episode of From the Heart, Rachael sits down with Laura Achilles, a heart adult living with congenital heart disease (CHD). Laura, an actor in...

An active and full life with CHD: Jeremy Richardson's Story

03 Jul 2024

Contributed by Lukas

Join our host Rachael Knowles as she chats with Jeremy Richardson, an adventurous adult in his 30s living with truncus arteriosus. Jeremy leads an act...

Elijah's Journey: Embracing Identity, Culture, and Confidence as a Young Adult with CHD

15 May 2024

Contributed by Lukas

In this episode of From the Heart, Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (C...

Better Care for RHD: Insights from Erin Ferguson at Happy Heart Clinic

07 May 2024

Contributed by Lukas

In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consult...

Resilience & Discovery: Sarah's heart journey

21 Apr 2024

Contributed by Lukas

In this episode, Rachael chats to Sarah Purdom, a wonderful heart adult who is not only navigating life with a heart condition (Transposition of the G...

Creativity, optimism, and community: CJ's journey with bicuspid aortic valve

07 Apr 2024

Contributed by Lukas

In this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hea...

Amber Adamson - Ask a nurse anything!

21 Mar 2024

Contributed by Lukas

Welcome to a very special episode of the HeartKids From The Heart. n this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consult...

My heart kid dad journey: From childhood to adulthood - Matt's Story

02 Mar 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandr...

Missing School, and the impact of critical health on education, and social experiences - Megan Gilmour

17 Feb 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with Missing School CEO Megan Gilmour.Sami and Megan chat about...

What is Childhood-onset Heart Disease? HeartKids CEO Lesley Jordan takes us through this term

03 Feb 2024

Contributed by Lukas

In this episode of "From the Heart," join our host, Sami, for a conversation with HeartKids CEO Lesley Jordan.Sami and Lesley chat about con...

2023 Encore #3: What is Genetic Counselling? Laura Yeates

20 Jan 2024

Contributed by Lukas

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #3 - Genetic Counsel...

2023 Encore #2: How Cardiomyopathy Impacted My Family... Matt Nelson's Story

06 Jan 2024

Contributed by Lukas

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #2 - Matt Nelson&apo...

2023 Encore #1: Growing Up With A Heart Condition... Eve's Story

23 Dec 2023

Contributed by Lukas

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #1 - Eve's Stor...

Life, footy and supporting the HeartKids community with Jaidyn Stephenson, HeartKids Ambassador

09 Dec 2023

Contributed by Lukas

In this episode of "From the Heart," join our host, Rachel, for a special conversation with Jaidyn Stephenson, North Melbourne AFL Player, a...

High school and life beyond as a HeartKid - Monica's Story

25 Nov 2023

Contributed by Lukas

On this episode of From The Heart, we’re getting to know Monica Tolic – a heart teen from Adelaide who recently finished her last day of high scho...

Navigating the financial aspects of Childhood Heart Disease with Elle Pendrick

11 Nov 2023

Contributed by Lukas

In this episode of From the Heart, we're joined by Elle Pendrick, a HeartKid herself and member of our HeartKids Board. Elle is also the founder ...

My Adult Congenital Heart Disease Diagnosis Journey: Tess' Story

28 Oct 2023

Contributed by Lukas

In this episode of From the Heart, we're joined by Tess Waterhouse who shares her remarkable journey of receiving a diagnosis of Congenital Heart...

Deadly Heart Trek, and Rheumatic Heart Disease: Dr Gavin Wheaton

14 Oct 2023

Contributed by Lukas

This episode, Sami chats to Dr Gavin Wheaton about Rheumatic Heart Disease, and the Deadly Heart Trek.Dr Wheaton is a paediatric cardiologist at Adela...

CHD Community and Me: Ellen Mitchell's Story

30 Sep 2023

Contributed by Lukas

This episode, Sami chats to Ellen Mitchell about the impact of becoming a Heart Mum, and how she gives back to the CHD community.Ellen is the Regional...

Exercise Physiology and CHD - Fitness for Life: Dr Derek Tran

16 Sep 2023

Contributed by Lukas

This episode, Sami chats to Dr Derek Tran, about exercise physiology, and supporting fitness for those with Congenital or Childhood-Onset Heart Diseas...

Empowering Health: A Conversation with RN Jayhrani Nicholls on supporting young people with Rheumatic Heart Disease

02 Sep 2023

Contributed by Lukas

This episode, Tahnee chats with Jayhrani Nicholls, a registered nurse and Aboriginal woman who works at Ngak Min Health, located on the Djarragun Coll...

From Heart Transplant to Wheelchair Sport: Ahmad's Incredible Journey

19 Aug 2023

Contributed by Lukas

In this episode, Rachael chats with Ahmad, a remarkable 17-year-old who faced a life-saving heart transplant during the pandemic. His journey is a tes...

Cardiac Surgery Care: May Chan and Bambang Kurnia

05 Aug 2023

Contributed by Lukas

In this episode, Rachael interviews May Chan and Bambang Kurnia, from the Royal Children's Hospital in Melbourne. May is an experienced Clinical ...

HeartKid Sibling and Health Care Advocate: Syeda's Story

22 Jul 2023

Contributed by Lukas

In this episode of From the Heart, Rachael Knowles speaks with Syeda Sultana a devoted sibling and steadfast advocate for her brother who sadly passed...

1800 Helpline: How Can I Be the Support You Need? ... Mel Clarke's Story

08 Jul 2023

Contributed by Lukas

Mel is a project coordinator at HeartKids, as part of the National Action Plan, implemented to reduce the impact of childhood heart disease in Austral...

Paediatric CHD Surgery: Dr Prem Venugopal

24 Jun 2023

Contributed by Lukas

Dr Prem is cardiothoracic surgeon based in Queensland, at Queensland Children’s Hospital. He performs lifesaving surgeries on children with CHD, and...

What is Genetic Counselling? Laura Yeates

10 Jun 2023

Contributed by Lukas

Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this ep...

Living with CHD in the '60s... Marjorie Doyle's Story

27 May 2023

Contributed by Lukas

Marjorie is a Kombumerri woman, who was born with Tetralogy of Fallot, and had surgery at the age of 13, in 1968. In this episode, Marjorie talks abo...

Championing for Change: My Rheumatic Heart Disease Journey... Kenya McAdam's story

13 May 2023

Contributed by Lukas

Kenya was diagnosed with a heart condition at the age of 14. In this episode, Kenya talks about travelling for open heart surgery, her connection with...

Greek Sweets and Good Will: How I Support The CHD Community... Arthur Iliopoulous' Story

29 Apr 2023

Contributed by Lukas

Arthur is a dad to a daughter with CHD, and a passionate fundraiser for HeartKids through his workplace. In this episode, Arthur talks about his famil...

Starting School and CHD: What Do We Need To Know?... Catherine Day's Story

15 Apr 2023

Contributed by Lukas

Catherine is a mother to a 13-year-old with CHD and has worked in the education system for 18 years. In this episode, Catherine talks about children w...

How Cardiomyopathy Impacted My Family... Matt Nelson's Story

01 Apr 2023

Contributed by Lukas

Matt has been touched by CHD as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to complications from hypertrophic cardi...

Growing Up With A Heart Condition... Eve's Story

18 Mar 2023

Contributed by Lukas

Eve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In thi...

HeartKids Dads: A Support Group For Fathers Of Children With CHD... Ben Taylor

04 Mar 2023

Contributed by Lukas

Ben Taylor runs HeartKids Dads, a national support group for fathers of children with heart conditions. In this episode he talks about his own family&...

I Had No Idea I Was About To Become A Heart Mum... Sami Glastonbury's Story

18 Feb 2023

Contributed by Lukas

At Sami's 21-week scan, she was told her unborn baby had a heart condition. In that moment, life changed forever. In this episode, Sami bravely o...

BEST OF 2022 #1: Kimberley's Story

04 Feb 2023

Contributed by Lukas

Counting down our most popular episodes of 2022... #1!When your child is unwell, often it's the only thing you can focus on or think about. But w...

BEST OF 2022 #2: Neurodevelopment and CHD

21 Jan 2023

Contributed by Lukas

Counting down our most popular episodes of 2022... #2!What is neurodevelopment?What is the connection between CHD and neurodevelopment in children?Wha...

BEST OF 2022 #3: Exercise and CHD

07 Jan 2023

Contributed by Lukas

Counting down the most popular episodes of 2022... #3!Should I exercise if I have a heart condition?The answer is, almost everyone with a congenital o...

We Know How To Prevent It, So Why Does This Type Of Childhood Heart Disease Still Exist In Australia? Dr Ben Reeves

17 Dec 2022

Contributed by Lukas

Dr Ben Reeves is a paediatric cardiologist in North Queensland. He's one of only three paediatric cardiologists you'll find north of Brisban...

Can CHD Impact Mental Health? Dr Liza Morton

03 Dec 2022

Contributed by Lukas

Liza is a psychologist. She also lives with a congenital heart condition. In this episode, we talk all about the psychological needs and challenges th...

What Happens When I Move To The Adult Hospital? Evelyn Culnane

19 Nov 2022

Contributed by Lukas

Evelyn has helped thousands of young people transition from the paediatric to adult health care system. Out of the Royal Children's Hospital in M...

How HeartKids Teen Camps Changed My Life... Claire's Story

05 Nov 2022

Contributed by Lukas

Growing up in regional NSW, Claire was the only heart kid in town. Attending HeartKids Teen Camp and meeting other young people was a gamechanger for ...

Australian National Standards of Care for Childhood-onset Heart Disease... Prof Gary Sholler

22 Oct 2022

Contributed by Lukas

The Standards of Care for the Childhood-onset Heart Disease (CoHD) community are over 10 years in the making. What are the CoHD Standards? They outlin...

Growing Up In The 70s With A Congenital Heart Condition... Deb's Story

08 Oct 2022

Contributed by Lukas

Deb was born in 1968 with a complex heart condition. It wasn't until the late 70s that Deb was able to have surgery for her condition. Deb credit...

Heart And Life Updates With Rachael and Sam

24 Sep 2022

Contributed by Lukas

We catch up with co-hosts Rachael and Sam to hear how they are going on their journeys. Rachael and Sam also chat about the podcast - what they'v...

My Heart Condition Doesn't Define Me... George's Story

10 Sep 2022

Contributed by Lukas

George is 21 years old from Tasmania. Born with a complex heart condition, George has had six open-heart surgeries.In this episode, George talks about...

One Of My Twins Was Born With A Heart Condition... Hannah's Story

27 Aug 2022

Contributed by Lukas

When Hannah noticed one of her twins wasn't taking as much milk from the bottle during feeding, she never thought it could be a problem with her ...

What's The Connection Between CHD And Neurodevelopment? A/Prof Rob Justo and Prof Will Parsonage

13 Aug 2022

Contributed by Lukas

What is neurodevelopment? What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experi...

Common Cardiac Procedures... Professor David Celermajer

30 Jul 2022

Contributed by Lukas

ECGs, chest x-rays, blood tests, ultrasounds, exercise tests, CT scans, MRI scans and catheters.  If you have a childhood heart condition, you have l...

Growing Up With My Heart Condition... Caitlin's Story

16 Jul 2022

Contributed by Lukas

Caitlin was born with pulmonary atresia with a VSD, requiring three surgeries before the age of one. In Year 12, Caitlin was busy thinking about what ...

How Becoming A Father Helped Me Understand What Heart Parents Go Through... Levi's Story

02 Jul 2022

Contributed by Lukas

Levi is a young father and amateur triathlete from Brisbane. In his early twenties, Levi dropped out of care. Levi's hospital had been trying to ...

How To Prepare For Open-Heart Surgery... Tips And Tricks From A Pro! Elle Pendrick

18 Jun 2022

Contributed by Lukas

After 5 open heart surgeries, Elle is a pro. She shares tips for how to prepare, what to expect during it, and the best ways to recover.How do you mak...

What Is Wadja Aboriginal Family Place? Annette 'Netty' Gaulton

04 Jun 2022

Contributed by Lukas

Kooma woman Netty Gaulton is an Aboriginal Case Manager within the cardiac unit at the Royal Children's Hospital in Melbourne. In this role, Nett...

My Daughter's Heart Transplant... Ebony's Story

21 May 2022

Contributed by Lukas

Ebony had no idea her two-year-old daughter Milly even had a heart condition when she became unwell and was rushed to hospital one night. The doctors ...

RESEARCH UPDATE: The Genetic Causes of Congenital Heart Disease... A/Prof Mirana Ramialison

11 May 2022

Contributed by Lukas

Mirana and her research team have identified 35 new genes associated with congenital heart disease. Their research is changing what we know about the ...

My Son Needed 4 Surgeries In 16 Months For His Congenital Heart Disease... Mandela's Story

27 Apr 2022

Contributed by Lukas

Mandela is a Yawuru woman from Broome in Western Australia. Mandela was 29 weeks pregnant with her first child when she received the news that her bab...

Our Rheumatic Heart Disease Journey... Lynette's Story

27 Apr 2022

Contributed by Lukas

Lynette is a Torres Strait woman from Moa Island.  Lynette had never heard of rheumatic heart disease (RHD) before her son Jalil was diagnosed four y...

What's It Like Growing Up With A Heart Condition? Sam's Story

23 Apr 2022

Contributed by Lukas

Growing up with a scar on his chest, Sam sometimes felt different from his friends. Attending his first HeartKids Teen Camp and meeting other teens wi...

Pregnancy, Contraception, Family Planning and CHD... A/Prof Dominica Zentner

10 Apr 2022

Contributed by Lukas

What does having a congenital heart condition mean for pregnancy and fertility? How can my health care team help me prepare for pregnancy and startin...

How Meeting Other Parents Helped On Our Congenital Heart Disease Journey... Natasha's Story

26 Mar 2022

Contributed by Lukas

Ten years ago, Tash had never heard of congenital heart disease or HeartKids. That all changed in 2012. A routine visit to the GP with her three-year-...

My Family's Journey Of Congenital Heart Disease, Grief, and Hope... Dominic's Story

12 Mar 2022

Contributed by Lukas

Dom's message for anyone experiencing grief is simple: You are not alone. The Frawley family experienced devastating loss in 2013 when their youn...

My Heart and My NRLW Footy Career! Kennedy Cherrington's Story

26 Feb 2022

Contributed by Lukas

Kennedy had open-heart surgery when she was eight years old. Today she plays in the NRLW for the Parramatta Eels and is one of the brightest young tal...

The Grief At The Heart Of It... Rachael Knowles' Story

13 Feb 2022

Contributed by Lukas

Can you be strong about your heart condition and grieve for it at the same time? Growing up, Rachael never let her heart condition get in her way. She...

Why Exercise Is Good For Congenital Heart Disease With A/Prof Rachael Cordina

31 Jan 2022

Contributed by Lukas

Should I exercise if I have a heart condition? The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise...

What Pregnancy Is Like When You Have A Congenital Heart Condition... Tegan's Story

20 Dec 2021

Contributed by Lukas

What is pregnancy like when you have a congenital heart condition? Tegan had a Fontan procedure as a child. She's now 34 years old and a mother o...

How My Baby's Congenital Heart Disease Diagnosis Affected Me... Kimberley's Story

20 Dec 2021

Contributed by Lukas

When your child is unwell, often it's the only thing you can focus on or think about. But what happens if you start to notice you are struggling?...

How Open-Heart Surgery Changed My Life... Sam Stolberg's Story

08 Dec 2021

Contributed by Lukas

What is having open-heart surgery really like? Sam Stolberg was born with a heart condition. Growing up, his condition didn't impact him very muc...