Cancer-causing gene found in donor sperm across Europe

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Global News Podcast 33 min 10 speakers 8 chapters transcribed
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Oliver Conway 0:00
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Oliver Conway 0:39
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Dr. Will Sedley 0:43
The child is directed on camera to plead for help.
Vanessa Buschluter 0:46
I want to be a normal kid. I want to go to school. They were going to upload it to social media. Millions of dollars pour in, but the families never receive the money.
Oliver Conway 0:57
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Lucas de Groot 1:02
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James Gallagher 1:07
World of Secrets, the child cancer scam from the BBC World Service. Listen now wherever you get your BBC podcasts.
Oliver Conway 1:21
You're listening to the Global News Podcast from the BBC World Service. Hello, I'm Oliver Conway. We're recording this at 16 hours GMT on Wednesday, the 10th of December. Nearly 200 children have been fathered by a sperm donor with a cancer-causing gene mutation. But how could it happen? The Venezuelan opposition leader, Maria Corina Machado, calls on democracies to fight for their freedom in a speech delivered by her daughter at the Nobel Peace Prize ceremony. And... I'm in a village... Ooh, there's another boom of artillery. About three kilometres from the border, standing next to a house that was hit by a rocket yesterday. We hear from the Thai-Cambodia frontier as half a million people flee the fighting.
Oliver Conway 2:07
Also in the podcast... What we're trying to do is develop a form of sound that helps actually quieten the tinnitus persistently and have a lasting effect. The new therapy offering hope to sufferers of tinnitus... Every year, egg and sperm donations help thousands of people with fertility issues start families of their own. But a Europe-wide investigation has found that one sperm donor, who fathered nearly 200 children, unwittingly passed on a genetic mutation that dramatically increased their risk of cancer. Celine, not her real name, is a single mother in France whose child was conceived 14 years ago. She received a call from her fertility clinic in Belgium urging her to get her daughter screened.
Oliver Conway 2:54
She told us of her fears over the possibility her child may develop cancer. We have translated her words.
Celine (not her real name) 3:00
We don't know when, we don't know which one, and we don't know how many. I understand that there's a high chance it's going to happen, and when it does, we'll fight. And if there are several, we'll fight several times. The most unacceptable thing for me is that I was given sperm that wasn't clean, that wasn't safe, that carried a risk that hadn't been properly tested. That's the most unacceptable thing for me. He was not aware, I believe, that he was a carrier of a mutated gene, so I have absolutely no hard feelings towards him.
Oliver Conway 3:33
Some of the children have already died, and only a minority who inherited the mutation will manage to avoid the disease entirely. I heard more from our health correspondent, James Gallagher. So this sperm donor donated back as a student in 2005, and we think that that sperm was used in around 67 fertility clinics across 14 countries. And the European Sperm Bank said it would have not been possible to detect the mutation this man had by preventatively genetically screening him. And once they did know that he carried this mutation, it was immediately blocked. But so many women and families are affected and the sperm was used by so many people. It's because fertility rules don't work across country borders.
Oliver Conway 4:16
So if you were to go to Belgium or Germany or Greece, each of those countries would have a limit on how often a sperm donor can be used in how many different families in that country.

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