Health Law

Ethical considerations in establishing an open access genomics database in South Africa.

02 Oct 2023

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In this podcast episode, Ms Nomfundo Mthembu and Ms Amy Gooden discuss the ethical considerations in establishing an open access genomics database in South Africa. Summary Although genomics research has the potential to improve healthcare, only a small percentage of genomic data used internationally relates to persons of African origin. Although the establishment of a large scale, open access genomics database of South Africans may contribute to solving this problem, it is not without its ethics concerns, such as privacy risks and informed consent. Open consent offers a potential solution by being explicit about the risks involved. Furthermore, in the South African context—where local culture is infused with Ubuntu—community engagement is vital for establishing and maintaining an open access genomics database of South Africans. Further reading Gooden, A., and Thaldar, D. (2023). Toward an open access genomics database of South Africans: Ethical considerations. Frontiers in Genetics. https://doi.org/10.3389/fgene.2023.1166029 Thaldar D, Gooden A and Steytler M (2023) Open science and human genetic data: recommendations on South Africa’s Draft National Open Science Policy. Frontiers in Genetics. https://doi.org/10.3389/fgene.2023.1248747 See also Thaldar, D., Gooden, A., and Donnelly, D.-L. (2023). Toward an open access genomics database of South Africans: Legal considerations. South African Journal of Science. https://doi.org/10.17159/sajs.2023/15069

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13:00H | 21 DIC 2025 | Fin de Semana

01 Jan 1970

Fin de Semana

10:00H | 21 DIC 2025 | Fin de Semana

01 Jan 1970

Fin de Semana

12:00H | 20 DIC 2025 | Fin de Semana

01 Jan 1970

Fin de Semana

2ª PARTE | 06 ENE 2026 | EL PARTIDAZO DE COPE

01 Jan 1970

El Partidazo de COPE

3ª PARTE | 22 ENE 2026 | EL PARTIDAZO DE COPE

01 Jan 1970

El Partidazo de COPE

3ª PARTE | 04 MAR 2026 | EL PARTIDAZO DE COPE

01 Jan 1970

El Partidazo de COPE

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Health Law

Ethical considerations in establishing an open access genomics database in South Africa.

This episode hasn't been transcribed yet

Other recent transcribed episodes

13:00H | 21 DIC 2025 | Fin de Semana

10:00H | 21 DIC 2025 | Fin de Semana

12:00H | 20 DIC 2025 | Fin de Semana

2ª PARTE | 06 ENE 2026 | EL PARTIDAZO DE COPE

3ª PARTE | 22 ENE 2026 | EL PARTIDAZO DE COPE

3ª PARTE | 04 MAR 2026 | EL PARTIDAZO DE COPE

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