Lichen Sclerosus Podcast
Episodes
Finding Hope When the Road Isn't Straight
07 May 2026
Contributed by Lukas
If you’ve disclosed your LS to someone and they brushed it off, that isn’t on you—it’s on them. Because when you share this, you are giving th...
New Hope for Lichen Sclerosus: Insights from Silicone Treatment Studies
07 Feb 2025
Contributed by Lukas
Episode Description:Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we...
The Future of LS Care: A Conversation with Dr. Jill Krapf
09 Dec 2024
Contributed by Lukas
Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportu...
Break the Cycle of Suffering This 2024 GivingTuesday
03 Dec 2024
Contributed by Lukas
Join us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their missi...
Communication, Vulnerability, and Sex Positivity Transform an LS Relationship
29 Apr 2024
Contributed by Lukas
If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly ...
Live Lichen Sclerosus and Sexual Wellness Panel Replay
22 Apr 2024
Contributed by Lukas
Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https:...
Rebuilding Relationships and Reconnecting with Lichen Sclerosus
17 Apr 2024
Contributed by Lukas
Topics:What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Careg...
Unraveling The Hormone And Microbiome Puzzle In Lichen Sclerosus
01 Mar 2024
Contributed by Lukas
Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated ...
Unlocking LS Wisdom: Exploring the Comprehensive Content of LSSN
27 Nov 2023
Contributed by Lukas
Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, ...
Why You Need to be at the LSSN Mini Summit
15 Sep 2023
Contributed by Lukas
Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discus...
Find Your Power Through Pelvic Health with Wellness.By.Penny
23 Jun 2023
Contributed by Lukas
In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic...
The Challenges of Research with Sophie Rees
16 Jun 2023
Contributed by Lukas
In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the d...
Listen to This If You're Looking For Evidence-based Information and Community
30 Apr 2023
Contributed by Lukas
When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holi...
How steroids affect lichen sclerosus patients with Dr. Jill Krapf
25 Apr 2023
Contributed by Lukas
Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topi...
Do you want to Get Your Sexy Back? You need this program.
31 Mar 2023
Contributed by Lukas
Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been de...
Demystifying steroid treatment for lichen sclerosus
17 Mar 2023
Contributed by Lukas
Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do w...
Pain Relief Without Pills: Ashlie Crewe's Guide to Treating Persistent Pelvic Pain
02 Mar 2023
Contributed by Lukas
Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only ...
Dr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical Lysis
16 Feb 2023
Contributed by Lukas
In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovati...
Struggling with Stress and LS? You need to hear this!
14 Jun 2022
Contributed by Lukas
Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chro...
Is Somatic Sex Education for YOU?
03 May 2022
Contributed by Lukas
Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit...
Unravelling 9 Years of Managing LS Naturally Through AIP
05 Feb 2022
Contributed by Lukas
Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an a...
How to apply your LS steroid treatment correctly with Dr. Jill Krapf
21 Jan 2022
Contributed by Lukas
Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn t...
Why are health goals important?
08 Jan 2022
Contributed by Lukas
It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one li...
Top 5 Episodes of 2021
18 Dec 2021
Contributed by Lukas
Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was ...
Pediatric Lichen Sclerosus with Dr. Sandy Flann
10 Dec 2021
Contributed by Lukas
Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric ...
Don't Let Lichen Sclerosus Take Control Of Your Life
03 Dec 2021
Contributed by Lukas
Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to s...
What's the best lubricant for Lichen Sclerosus?
19 Nov 2021
Contributed by Lukas
Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options ...
LS Grooming Best Practices with Dr. Cynthia Wesley
11 Nov 2021
Contributed by Lukas
Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is ...
How Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley Stump
05 Nov 2021
Contributed by Lukas
Hey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about L...
Covid Update
04 Nov 2021
Contributed by Lukas
If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I release...
Covid Update
30 Oct 2021
Contributed by Lukas
Heeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most excitin...
Lichen Sclerosus Provider Directory and an LS Nonprofit?
30 Apr 2021
Contributed by Lukas
Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explor...
Acceptance and Resilience: A Round Table Discussion
16 Apr 2021
Contributed by Lukas
Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts ...
How to Find Peace After Stress Triggers Your LS, Jennifer's Story
09 Apr 2021
Contributed by Lukas
I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story o...
Unraveling the Diet- Lichen Sclerosus Connection with Erica Eberl
02 Apr 2021
Contributed by Lukas
Uncover the potential connection between your diet and long-term health with this groundbreaking research on Diet and LS. Â Erica Eberl is a 23-year-...
Heather Cooan: Healing Lichen Sclerosus with Nutrition Therapy
26 Mar 2021
Contributed by Lukas
Unearth the root cause of your Lichen Sclerosus and transform your life with Heather Cooan's real talk about nutrition and lifestyle changes. "But sh...
How Self-Advocating Actually Helped Beat Vulvar Cancer
19 Mar 2021
Contributed by Lukas
Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis s...
How The System Failed Heather Cooan.
12 Mar 2021
Contributed by Lukas
Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical syst...
Jaclyn's Lost Labia Journey: Finding Community
05 Mar 2021
Contributed by Lukas
Hey! Welcome. I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go fr...
Jaclyn's Lost Labia Journey: Surviving Alone
26 Feb 2021
Contributed by Lukas
Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey w...
How to Snap Out of Appointment Anxiety
19 Feb 2021
Contributed by Lukas
This week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future mig...
Carrie Bock’s LS Journey: From Pain To Love
12 Feb 2021
Contributed by Lukas
Does Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever b...
How are reproductive age women and steroids similar with Dr. Jill Krapf
05 Feb 2021
Contributed by Lukas
Welcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproduct...
How GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUS
28 Nov 2020
Contributed by Lukas
I woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy a...
Is Lichen Sclerosus Lowering Your Sex Drive?
21 Nov 2020
Contributed by Lukas
Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights.As I'm sure you know because you live it Lichen Sclero...
My Diagnosis Story: Kathy
13 Nov 2020
Contributed by Lukas
I'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". S...
Lichen Sclerosus Diagnosis Stories: You Are Not Alone
06 Nov 2020
Contributed by Lukas
This week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similar...
How to still have a great relationship despite Lichen Sclerosus
30 Oct 2020
Contributed by Lukas
Have you ever thought about how LS will or has affected your relationship? How it has or will affect your partner? This week I was inspired by a DM I ...
7 Ways To Stop Vulvar Itch From Lichen Sclerosus
23 Oct 2020
Contributed by Lukas
Do you have the itch? You know the one I'm talking about. The one that makes your vulva feel like ants are crawling all over it. That unforgiving desi...
The Mental Side of Lichen Sclerosus
16 Oct 2020
Contributed by Lukas
This week I make my contribution to World Mental Health Day. I am super passionate about the aspect of mental health in Lichen Sclerosus. In this epis...
Why I hesitated to check my vulva but you shouldn't delay.
09 Oct 2020
Contributed by Lukas
Did you know you were supposed to check your vulva each month? Yep! But what exactly does that mean? What are we looking for? What do we do if some...
How to advocate for yourself and make your doctor an effective partner
02 Oct 2020
Contributed by Lukas
Is your train of thought, "I'm going to the doctor so they can tell me what's wrong and they can fix me."? Yeah, mine used to be too. Until I starte...
Lichen Sclerosus Basics
25 Sep 2020
Contributed by Lukas
Have you recently been diagnosed with Lichen Sclerosus or just started looking into it? If so this is the episode for you. Today we talk about causes,...
Update: Where the hell have I been?
19 Sep 2020
Contributed by Lukas
Just wanted to let you know I was alive and what's going on.
Giving Yourself Grace
15 Aug 2020
Contributed by Lukas
This week I give you a health update and explain how I've been practicing giving myself grace. Chronic illness can create changes in our lives that we...
Pull Back Your Power with Dr. Anne Whitehouse
08 Aug 2020
Contributed by Lukas
Has LS taken over most of your waking thoughts? Does it have you questioning your womanhood or sex appeal? Has it made you feel less than? Then you ne...
Listen to Your Body
01 Aug 2020
Contributed by Lukas
This week I went off script and had a frank talk about what's been going on with me. It's so important to listen when your body is telling you to slow...
Lou's Diagnosis Story
24 Jul 2020
Contributed by Lukas
Our sister in Lichen Sclerosus, Lou from Australia, shares her diagnosis story with us. Her trials with everything from doctors to mental health. Be p...
Do you need a support group?
18 Jul 2020
Contributed by Lukas
This week we dive into support groups. Why you may need one? Why they are important and what to look for in the right support group for you? I'll also...
LS Clinical Trials with Leia Michell
10 Jul 2020
Contributed by Lukas
Leia Mitchell and I are back with the second part of our conversation. This week we discuss clinical trial research around Lichen Sclerosus. Leia tell...
Not in a good place
13 Jun 2020
Contributed by Lukas
Hey. It's been a tough time lately and I can't be of service to you the way I want to so I will be taking some time off. I hope to be back reinvigorat...
Does Using Your Voice Really Work?
04 Jun 2020
Contributed by Lukas
This is the hardest episode I have ever recorded. It's raw and barely edited. It is needed. Please please please listen to this message. It is so impo...
The State of Lichen Sclerosus Today with Leia Mitchell
30 May 2020
Contributed by Lukas
Ever wonder what's going on with Lichen Sclerosus today? With all the different perspectives and voices what does the science say? I speak with Leia M...
What Can We Learn From Breast Cancer Awareness?
17 Apr 2020
Contributed by Lukas
I recorded this on World Voice Day. I decided to use my voice to tell you my mission and hope you join me. Please listen all the way through because t...
What if my medicine stops working?
11 Apr 2020
Contributed by Lukas
What would you do if your topical corticosteroid stopped working? I mean think about. Remember how it felt when you first noticed something was off wi...
How to have BETTER sex even though you have Lichen Sclerosus.
04 Apr 2020
Contributed by Lukas
Just a quick warning, I will be talking about sexual things. If you are sensitive to that I completely understand but this may not be the blog for you...
Should We Be Worried?
24 Mar 2020
Contributed by Lukas
Covid-19 aka coronavirus has turned our world upside down. So I went searching to see what people in the online communities were saying about it. Some...
10 Tips To Destress and Reduce Lichen Sclerosus Flareups
16 Mar 2020
Contributed by Lukas
Does stress cause Lichen Sclerosus flareups? The effects of stress on LS have not been researched. However, my personal experience is that they are co...
The Worst Symptoms of Lichen Sclerosus
08 Mar 2020
Contributed by Lukas
Lichen Sclerosus affects everyone differently. Each person can have a different variety of symptoms or no symptoms at all. This week I tell you about ...
My Lichen Sclerosus Diagnosis
28 Feb 2020
Contributed by Lukas
Lichen Sclerosus is often misdiagnosed many times before it is finally correctly diagnosed and treated. This can lead to frustration, disappointment, ...
The Lichen Sclerosus Manifesto
22 Feb 2020
Contributed by Lukas
February is Vulval Health Awareness Month, Vulvuary! In celebration, I give you some stats and introduce you to the Association for Lichen Sclerosus a...
Hello. I have Lichen Sclerosus.
10 Feb 2020
Contributed by Lukas
Hi! My name is Kathy. I have been diagnosed with Lichen Sclerosus for two years but suffering much longer. I have minimal knowledge of the disease and...