Life with Long Covid
Episodes
61: "It's great that you are getting better"
13 Mar 2026
Contributed by Lukas
Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
60: "What does your daily routine look like?"
02 Mar 2026
Contributed by Lukas
This week I reflect on an occupational health assessment. Reflecting on our own chronic illness can be hard, but this time I discovered unexpected gai...
59: "Are you still ill?"
23 Feb 2026
Contributed by Lukas
In this episode, I reflect on the challenges of having a chronic illness after five years of Long Covid. I also give an update on oxygen therapy.www.l...
58: "You look like a pilot from Top Gun"
13 Feb 2026
Contributed by Lukas
This episode focuses on my early experiences of high-dose oxygen therapy. With Rachel, I delve into how it has made me feel and the way my life has ch...
57: "What do you do all day?"
06 Feb 2026
Contributed by Lukas
In this episode, I reflect on a question I was asked recently:“What do you do all day?”It sounds simple, but living with Long Covid means the answ...
56: Interlude: Your messages
30 Jan 2026
Contributed by Lukas
Life with Long Covid is more than a podcast; it is a community. This week, we read out some of your messages and reflect on how the community is helpi...
55: "What does it mean to live without guarantees?"
23 Jan 2026
Contributed by Lukas
In this episode of Life with Long Covid, I reflect on what illness quietly teaches us about control.Long Covid doesn’t just disrupt plans or routine...
54: "Why am i feeling so low in January?"
16 Jan 2026
Contributed by Lukas
January can feel heavier than we expect.The decorations are down, the light is scarce, the weather has turned cold, and the new year arrives carrying ...
53: "What does hope look like in 2026?
08 Jan 2026
Contributed by Lukas
As a new year begins, we are often encouraged to think about fresh starts and big plans. But what if hope looks different now?In this episode, I refle...
52: "Happy Christmas"
19 Dec 2025
Contributed by Lukas
In this episode, I am joined by Rachel to talk about the fear of getting the flu and managing energy levels over Christmas. To join the community, vis...
52: "It's only Christmas!"
10 Dec 2025
Contributed by Lukas
Christmas can be magical… but navigating chronic illness makes that harder. This episode explores the hidden labour, the energy budgeting, and the e...
51: "You look better"
03 Dec 2025
Contributed by Lukas
I recorded something a bit personal this week. Some friends visited recently and reminded me that I’ve made progress this year. I have a little bit ...
50: "What’s going on with all these bizarre long covid symptoms?"
24 Nov 2025
Contributed by Lukas
It’s the 50th episode of Life with Long Covid — and what better way to celebrate than by talking about the most baffling, bizarre, and frankly rid...
49: "Why is it so hard to explain long covid to other people?"
17 Nov 2025
Contributed by Lukas
Living with long Covid means explaining the same things again and again — what fatigue really is, why brain fog isn’t just forgetfulness, and why ...
48: “What are your plans for the future?”
10 Nov 2025
Contributed by Lukas
How do you rebuild a future when so much is uncertain? In this episode, I try and explain how I am coming to terms with chronic illness and what thing...
47: “You blame everything on Covid”
02 Nov 2025
Contributed by Lukas
In this episode, I discuss how Covid has caused secondary conditions and go on a rant about what it is like to live with them! I also reflect on the d...
46: "Do I have to earn my worth?"
27 Oct 2025
Contributed by Lukas
This week, Rachel joins me as we discuss very honestly how my frustration at not being able to do things makes me question my self-worth. We also dis...
45: "You should be working"
17 Oct 2025
Contributed by Lukas
It's impossible to live up to others’ expectations when you have a chronic illness. In this episode, I reflect on the negative influence of social m...
44: "Don't let your illness define your life"
13 Oct 2025
Contributed by Lukas
In this update, Paul shares openly and honestly about how long covid affects his mental health, particularly during a crash. www.lifewithlongcovid.co....
43: "Why are you still talking about Covid?"
03 Oct 2025
Contributed by Lukas
I have now had the symptoms of Long Covid for more than three years. In this episode, I reflect on the journey so far and how the world seems to have ...
42 "You Have Changed"
26 Sep 2025
Contributed by Lukas
What does it feel like to have not only your job, but your self-identity stripped away? In this episode, Paul reflects on how much his life has change...
41 "You might get a speeding ticket in that!"
19 Sep 2025
Contributed by Lukas
My scooter and wheelchairs have given me some of my freedom back and I am incredibly grateful for them. However, they also come with a lot of stress a...
40: "You just need a good nights sleep"
12 Sep 2025
Contributed by Lukas
What is it like to suffer from chronic fatigue? In this episode I try to describe living with this aspect of long covid and peoples reactions to it. ...
39: "Did you have a nice holiday?"
01 Sep 2025
Contributed by Lukas
After a summer break, the podcast is back! This week, I reflect on the experience of going on holiday and the challenge of changing routines with a ch...
38: "I should be doing more"
02 Jun 2025
Contributed by Lukas
Sometimes I get stuck in the past and think that I am the Paul who used to have lots of energy and had lists of things to do everyday. Living with a C...
37: "What do you do all day?"
16 May 2025
Contributed by Lukas
The covid pandemic might be a thing of the past for most people, but to some, it has changed their lives forever. In this episode, I reflect on having...
36: "I cannot face recording a podcast episode"
07 May 2025
Contributed by Lukas
Chronic Illness can get you down. In this episode, I talk about why I have not uploaded an episode lately and how my illness affects my mental health....
35: "Let's go out for the day"
14 Apr 2025
Contributed by Lukas
This week I reflect on a visit to London on the train and rant about assessments! Please support the podcast if you can by subscribing here.My book is...
34: "It's just a routine appointment."
08 Apr 2025
Contributed by Lukas
This week, I reflect on a recent post and a trip to our local hospital for a blood test. Rachel joins me again, and we read through some of the respon...
Turning The Tables: The Partners Perspective
31 Mar 2025
Contributed by Lukas
In this episode, I turn the tables on my wife, Rachel, and ask her about what it's like to live with someone who has Long Covid. It's a candid and hon...
32: "How disabled are you?"
24 Mar 2025
Contributed by Lukas
This week, I reflect on an assessment I was asked to complete for benefits, aimed at judging how disabled I am due to Long Covid. It helped me reflect...
31: "Why are so many people sick?"
17 Mar 2025
Contributed by Lukas
I triumph on achieving a small task and reflect on Long Covid awareness day. Five years on from the pandemic's beginning, are we doing all we can to ...
30: "What happens when you crash?"
10 Mar 2025
Contributed by Lukas
I often talk about 'crashing', but what does it really mean? In this episode I reflect on the different things that cause me to crash and the ways in ...
29: "Do you want to go out for the day"
03 Mar 2025
Contributed by Lukas
Organising a day out with mobility aids is no small task, but I thought I had cracked it. Armed with meticulous, military like planning and a new whee...
28: "You need more friends"
24 Feb 2025
Contributed by Lukas
In this week's episode, I discuss how important it is to maintain or rekindle friendships, even though it can be tough when you have an energy-limitin...
27: "What have you been doing?"
17 Feb 2025
Contributed by Lukas
This week, I am joined by my wife Rachel as we discuss how I plan my day and how essential it is to look ahead with chronic fatigue. I also talk about...
26: "You have booked accessible parking"
10 Feb 2025
Contributed by Lukas
When the lady on the phone told me I had accessible parking for my visit to a football stadium, I was pleased. However, what she left out could have m...
25:"You need to lose some weight"
03 Feb 2025
Contributed by Lukas
This week, I reflect on a 'mini crash' and the difficulty of deciding what to do. I also discuss the difficulty of gaining weight and what I...
24: "What are you waiting for?"
27 Jan 2025
Contributed by Lukas
Living with long covid can feel like you are in limbo. I have felt like that for the past three years, and in this episode, I ask myself, "What a...
23: "You said you were getting better last week"
20 Jan 2025
Contributed by Lukas
I am back after a short hiatus! In this episode, I explain what I have been up to and consider how Long Covid affects my mental health. Send Paul a ...
22: "You are too young to retire"
22 Nov 2024
Contributed by Lukas
Long COVID has transformed the way I view my life and my identity, especially as I navigate the unexpected path of early retirement. How do you explai...
21: "Do you need any help?"
15 Nov 2024
Contributed by Lukas
I find myself constantly being grumpy with people who just want to help, and equally grumpy with people who don't offer! It is this contradictory...
20: "There is no such thing as Long Covid"
08 Nov 2024
Contributed by Lukas
In this episode, I try to describe what it feels like to feel isolated with long covid. If you have a chronic illness and sometimes feel alone, this o...
19: "You should be in bed"
01 Nov 2024
Contributed by Lukas
How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the ...
18: "You need to find your baseline"
23 Oct 2024
Contributed by Lukas
What happens when the world moves on, but your body doesn't? From the isolation of feeling misunderstood to the frustration of being dismissed by...
17: "What happens if you get Covid again?"
13 Oct 2024
Contributed by Lukas
What happens when you find yourself facing long COVID for the third time, and the dread of uncertainty looms larger than ever? Join me, as I navigate ...
16: "Are you still tired?"
02 Oct 2024
Contributed by Lukas
Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID,...
15: "if you could just fill in this form"
26 Sep 2024
Contributed by Lukas
The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody ...
14: "You are needed at the hospital urgently"
19 Sep 2024
Contributed by Lukas
What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episo...
13: "When will this end?"
11 Sep 2024
Contributed by Lukas
What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relent...
Interlude: Your messages
06 Sep 2024
Contributed by Lukas
Thank you so much for your messages! Today, I felt like I had enough energy to go through some of them and record them for this special 'interlud...
12: "You just need a good nights sleep"
01 Sep 2024
Contributed by Lukas
In this episode, I talk about sleep and how Long Covid affects it, plus some of the things I have found helpful. I give an update on a few products th...
11: "I hope you had a nice holiday"
27 Aug 2024
Contributed by Lukas
I recorded this whilst still very weary after a holiday with the family. I reflect on my week away and the highs and lows of managing in a different e...
10: "A holiday will do you good"
16 Aug 2024
Contributed by Lukas
I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try a...
9: "Well done, you are out!"
11 Aug 2024
Contributed by Lukas
I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also ch...
8: "When are you going back to work?"
06 Aug 2024
Contributed by Lukas
In this episode I explore my experienes of attempting to work with Long Covid and the concequences. Hank the Cavalier King Charles makes a contributi...
7: "It's all in your head"
01 Aug 2024
Contributed by Lukas
In this episode, I talk about how Long Covid affects my mental health and the things that I do to help.Maisie the dog makes a brief appearance. I foun...
Interlude: A bad day
29 Jul 2024
Contributed by Lukas
I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe...
6: "This is the best thing I have ever tried"
26 Jul 2024
Contributed by Lukas
In this episode, I talk about my journey of introducing supplements and how it eventually led me to realise that I was looking for answers in the wron...
5: "You just need to do some exercise"
23 Jul 2024
Contributed by Lukas
In this episode, I talk about my experiences with various medical professionals and their reactions to my illness. I recorded this whilst having a ti...
4: Sunday afternoon "Walk" & talk
21 Jul 2024
Contributed by Lukas
My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us o...
3: "Everybody gets tired"
18 Jul 2024
Contributed by Lukas
Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into ...
2: "You look well"
17 Jul 2024
Contributed by Lukas
Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about ho...
1: An Introduction
14 Jul 2024
Contributed by Lukas
In this episode, Paul introduces himself and the series. Send Paul a text hereSupport the showBuy me a coffee Here! Get full access to Life With Lon...