Living With Lewy
Activity Overview
Episode publication activity over the past year
Episodes
Lewy Body Awareness Month
04 Oct 2024
Contributed by Lukas
October is Lewy Body Awareness Month share this podcast to help raise awareness!!!!Support the show
Life Inside the Bubble
27 Sep 2024
Contributed by Lukas
I am returning after a short absence with what it is like living inside the bubble of Lewy Body.Support the show
Power of Positive Mental Attitude
05 Apr 2024
Contributed by Lukas
In this episode I talk about getting up not giving up. And the power of trying to keep a positive outlook.Support the show
Emotional Fatigue and Increased Mental Fog
16 Mar 2024
Contributed by Lukas
In this episode I discuss a hidden enemy! Emotional fatigue and increased mental fog that happens when we need to rest and reset.Support the show
Lewy Body Dementia an Unchosen Path
24 Feb 2024
Contributed by Lukas
The title says it all, this is not a path we would choose but together we venture down this path! Support the show
The Stages Of Grief And My Journey To Acceptance continued!
09 Feb 2024
Contributed by Lukas
In this episode I continue to discuss my journey to accepting my diagnosis!Support the show
The Stages of Grieving and how I handled my diagnosis.
01 Feb 2024
Contributed by Lukas
After several requests to share how I arrived at acceptance I am covering the stages of the grieving process, This is how I have been able to navigate...
How Is Life Living with Lewy Going?
18 Jan 2024
Contributed by Lukas
In this episode I discuss where my journey Living with Lewy has taken me. I talk about realizing and accepting the changes that are happening!Support ...
Communication and Behavior! How do they relate to each other.
05 Jan 2024
Contributed by Lukas
In this episode I talk to Debra Kostiw about communication and how it affects behavior. This is interesting as you hear both sides the caregivers an...
Debra Kostiw talks about helping a loved one navigate the holidays
29 Dec 2023
Contributed by Lukas
In this episode Debra and I offer some helpful tips on how to help a loved one with dementia to navigate the holidays. This advice applies to any larg...
Debra Kostiw from Answers About Alzheimer's is our guest!
21 Dec 2023
Contributed by Lukas
In this episode we have as our guest the author of a number 1 best seller "Forget Me Not" Debra Kostiw. Debra also runs the a you tube chann...
Driving and when it's time to STOP!
15 Dec 2023
Contributed by Lukas
In this episode I am having to come to grips with another swing at my independence! Examining giving up driving for the safety of others and myself. ...
Social Media Groups and Advice
08 Dec 2023
Contributed by Lukas
I look at social media groups and some of the advice given can be supportive and other advice can be downright dangerous!Support the show
Coping Strategies That Have Helped Me!
30 Nov 2023
Contributed by Lukas
In this episode I share some of the coping strategies that make my living with lewy a little easier.Support the show
Showtime and Overstimulation
15 Nov 2023
Contributed by Lukas
In this episode I share with you what showtime means to me and the stress of overstimulation. The holidays are upon us and large gatherings of friends...
Jacquelyn's story continued living with Posterior Cortical Atrophy and Lewy Body
09 Nov 2023
Contributed by Lukas
In this episode Jacquelyn goes into how important it is to be your own advocate, rely on your own research. Life after her diagnosis, the importance o...
Jacquelyn continues her story of Posterior Cortical Atrophy and Lewy Body
02 Nov 2023
Contributed by Lukas
In this episode Jacquelyn continues her story which started on the October 3rd episode. Jacquelin tells of her experience with Posterior Cortical Atro...
Looking at the World Looking at Us!
26 Oct 2023
Contributed by Lukas
In this episode I talk about how it feels looking at the way the world looks at us and others with disabilities!Support the show
Trust Your Own Research
20 Oct 2023
Contributed by Lukas
In this episode I discuss why its important to do your own research. There is plenty of misinformation on the web and social media protect yourself. B...
Jacquelyn shares her story of Posterior Cortical Atrophy and Lewy Body
03 Oct 2023
Contributed by Lukas
In this episode Jacquelyn shares what Posterior Cortical Atrophy is and how it affects her Lewy Body. Support the show
Occupational Therapist Mandy McFadden
28 Sep 2023
Contributed by Lukas
In this episode Occupational Therapist Mandy McFadden discusses the importance of a cohesive therapy team.Support the show
Autonomic Changes in Lewy Body
15 Sep 2023
Contributed by Lukas
In this episode I discuss our autonomic system and how Lewy Body can affect its function.Support the show
Caregivers and the Importance of Their Support
08 Sep 2023
Contributed by Lukas
In this episode I salute all the caregivers out there!Support the show
The Drastic Swings of Lewy Body
01 Sep 2023
Contributed by Lukas
Perhaps one of the hardest things for our loved ones to understand. The swings between the highs and lows.Support the show
LIFE After the Diagnosis!!!
24 Aug 2023
Contributed by Lukas
In this episode I talk about life after the diagnosis and what has helped me the most.Support the show
Resources to help in understanding!
17 Aug 2023
Contributed by Lukas
In this episode I share educational resources that I hope aid you and your loved ones in understanding Lewy Body.Support the show
Finding Purpose In The Pain
10 Aug 2023
Contributed by Lukas
In this episode I discuss where I was able to find a new purpose in the pain of this diagnosis, How roles have changed in our home. Discovering there ...
Frustration, Aggravation and Agitation
04 Aug 2023
Contributed by Lukas
In this episode I discuss how these feelings have affected me. Some coping strategies that have been suggested. And some insights into the triggers th...
Hallucinations
28 Jul 2023
Contributed by Lukas
Hallucinations happen in up to 80% of people with Lewy Body. Many people are unaware that there are nonvisual hallucinations such as hearing or smelli...
Lewy Body Speech Problems & Speech Therapy
21 Jul 2023
Contributed by Lukas
In this episode we speak with Allison Staples of Delmarva Speech Therapy in Berlin, Maryland. We discuss some of the issues that can affect our speech...
Victories and Mental Attitude
14 Jul 2023
Contributed by Lukas
In this episode I discuss the importance of mental attitude and the celebration of victories large and small.Support the show
Mike speaks about his coping skills.
07 Jul 2023
Contributed by Lukas
We continue our conversation with Mike. He speaks of his coping skills he has developed and what works for him!Support the show
Two people bond over their Lewy Body experiences.
30 Jun 2023
Contributed by Lukas
After receiving a friend request on facebook from Mike we started to talk and found a common bond with Lewy Body. I live on Maryland's eastern sh...
The Rabbit Hole
23 Jun 2023
Contributed by Lukas
My trip into the rabbit hole of depression and the strategies that served as a rope to climb out,Support the show
Abbie's Story
16 Jun 2023
Contributed by Lukas
My daughter speaks about our lives and the impacts of this disease.Support the show
Living With Lewy Larry's Story
09 Jun 2023
Contributed by Lukas
This is my story to the best of my recollection. Everyone affected by Lewy Body understands how recall of events can be difficult. I will be continu...
Living With Lewy Official Launch
26 May 2023
Contributed by Lukas
Abbie and I take some time to tell you why we have started this podcast and a little about what we hope to achieveSupport the show
Living With Lewy Trailer
19 May 2023
Contributed by Lukas
Brief trailer describes our purpose behind this podcast. Support the show