Living with Long covid

Karen,Emma and Oonagh talk about their campaign group #ThereForME

23 Mar 2025

Contributed by Lukas

Send a textOn this episode of the podcast I am fortunate to be joined by Karen, Emma and Oonagh to discuss their campaign group #ThereForME. They cam...

Special episode; Kerry Davies joins me for a chat on International long covid awareness day

15 Mar 2025

Contributed by Lukas

Send a textThe 15th March 2025 marks International long covid awareness day, this year is also the five year milestone of the pandemic. For many it wi...

Patrick Ussher book release; Understanding ME/CFS & strategies for healing

09 Mar 2025

Contributed by Lukas

Send a textI am so pleased to be back recording the podcast, thank you for your continued support. I am pleased to have returning guest Patrick Ussher...

Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold

01 Dec 2024

Contributed by Lukas

Send a textIn this episode of the podcast, Robin McNelis joins me again for part 2 of a series where we aim to cover a variety of topics which will su...

Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science

17 Nov 2024

Contributed by Lukas

Send a textIn this episode I have returning guests; Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Un...

Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress

03 Nov 2024

Contributed by Lukas

Send a textIn this episode of the podcast I have guests Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel &quo...

Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important

20 Oct 2024

Contributed by Lukas

Send a textThis is part 1 of a series with Robin McNelis, Clinical Specialist Cardiorespiratory physiotherapist. In this episode we discuss pacing and...

Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more

15 Sep 2024

Contributed by Lukas

Send a textThis is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experien...

Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome

18 Aug 2024

Contributed by Lukas

Send a textFollowing on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on...

Returning guest Rachel Jessey - lets talk about the gut!

28 Jul 2024

Contributed by Lukas

Send a textIn this episode of the podcast I talk with a fantastic returning guest Rachel Jessey.We talk about all things gut related and the microbiom...

Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group

14 Jul 2024

Contributed by Lukas

Send a textIn this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journe...

The pandemic, the government and the general election

30 Jun 2024

Contributed by Lukas

Send a textIn this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floo...

Four years later!

16 Jun 2024

Contributed by Lukas

Send a textIn this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as a...

Guest; A. K. Davidson - Poetry for life and other chronic conditions

02 Jun 2024

Contributed by Lukas

Send a textOn this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chro...

Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS

19 May 2024

Contributed by Lukas

Send a textIn this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiratio...

Alexander Taylor - Creating a safe space

28 Apr 2024

Contributed by Lukas

Send a textIn today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me thi...

As requested....My experience on using a fitted Vagus nerve stimulator!

14 Apr 2024

Contributed by Lukas

Send a textAs requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fi...

NHS court hearing update with Kevin Digby and Rachel Hext

17 Mar 2024

Contributed by Lukas

Send a textIn this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a p...

Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid

25 Feb 2024

Contributed by Lukas

Send a textIn this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Ko...

Q&A with Kevin Digby GA Solicitors

11 Feb 2024

Contributed by Lukas

Send a textOver the last couple of weeks you may have seen in the news,  Dr Fearnley and the group she co-founded Long Covid Doctors for action; If n...

Invisible? but you can see and hear me!

28 Jan 2024

Contributed by Lukas

Send a textOn this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had  sent to my inbox, had such an impact on ...

Starting a new year 2024; not everything is perfect or planned

14 Jan 2024

Contributed by Lukas

Send a textHappy new year to everyone, this is the first podcast of 2024 and I will be honest it has no structure at all, but then that was the point!...

Keeping healthy boundaries

24 Dec 2023

Contributed by Lukas

Send a textIt is Christmas Eve 2023 and on this episode of the podcast I talk about creating healthy boundaries. What are healthy boundaries? how can...

Jo Bullingham joins me from POTS UK

10 Dec 2023

Contributed by Lukas

Send a textOn this episode of the podcast I chat with Jo Bellingham, charity manager for POTS UK. Jo and I discuss the POTS UK charity and Jo explains...

The autonomic nervous system, gaslighting and feeling able to talk about anxiety and depression

26 Nov 2023

Contributed by Lukas

Send a textOn this podcast I talk about anxiety and depression, the gaslighting, mental health and the autonomic nervous system. In this episode I di...

Jo Thomas personalised coach talks about Long term conditions, fatigue and her own experience of POTS

12 Nov 2023

Contributed by Lukas

Send a textOn this episode of the podcast I am talking with Jo Thomas personalised coach. Jo and I talk about holistic health and wellbeing, the impor...

Special guest Kerry Davies interviews me!

29 Oct 2023

Contributed by Lukas

Send a textThis is episode 80! I am so pleased to have my fellow LCNMUK (Long Covid nurses and midwives UK) colleague and friend Kerry join me in this...

Taking a break

13 Aug 2023

Contributed by Lukas

Send a textThis is episode 79 of the podcast, I have recorded and brought the podcast to you guys every single week for the last 79 weeks. I am apprec...

Robbie Williams....Why?

06 Aug 2023

Contributed by Lukas

Send a textMany of you may have seen the news recently, headlines stating Robbie Williams had to stop a gig after only 3 songs; allegedly because he w...

Guest Merel; choir master for the Long Covid kids choir

30 Jul 2023

Contributed by Lukas

Send a textMy guest today is Merel who is the choir master for the Long Covid Kids Choir. Merel talks about children with long covid and how they lack...

The bruising, the swelling, the rashes, the loss, the love, the hope!

23 Jul 2023

Contributed by Lukas

Send a textAfter a run of amazing guests I find myself alone on the podcast today, I wanted to talk about the impact the past, present and future has ...

Rachel Jessey - from Benourished talks on the gut microbiome, vagus nerve and more

16 Jul 2023

Contributed by Lukas

Send a textIn this episode of the podcast I talk with guest Rachel Jessey who is the owner of BeNourished. Rachel has been in clinical practice for 13...

Reema Ahmad: Discusses, Neuro linguistics programming (NLP), Trauma, culture and personal experience of having Long Covid in India

09 Jul 2023

Contributed by Lukas

Send a textIn this episode of the podcast I am please to have another great guest join me, Reema Ahmad is a Neuro linguistics programming (NLP), traum...

Gez Medinger; talks about his personal journey, The Long Covid handbook, Youtube videos and more.

02 Jul 2023

Contributed by Lukas

Send a textIn this episode of the podcast I was lucky enough to chat with  Gez Medinger, I appreciate Gez being a guest on this episode and sharing e...

Dr Sarah Glynne; Long Covid hormone imbalance, peri menopause, menopause and HRT

25 Jun 2023

Contributed by Lukas

Send a textOn this episode of the podcast I am grateful to welcome guest Dr Sarah Glynne. Many of you have contacted me regarding hormones and the per...

Making Peace with my Long Covid journey

18 Jun 2023

Contributed by Lukas

Send a textIn this episode of the podcast I discuss making peace with a long term condition, how do you do that? have I made peace with mine?Why is ma...

My treatment, rehab, and symptom management journey

11 Jun 2023

Contributed by Lukas

Send a textOn this episode of the podcast I discuss my Long Covid treatment and medical professional input from acute covid to the treatment I am havi...

What is restorative rest?

04 Jun 2023

Contributed by Lukas

Send a textOn this episode of the podcast I discuss rest and restorative rest, what is the difference. Did you know that there are 7 types of rest? I ...

Guest Shannon; Australia's vaccine mandate and living with vaccine injury

28 May 2023

Contributed by Lukas

Send a textOn this episode, I have a lovely guest, Shannon is a secondary school teacher from Perth, Western Australia. Shannon was working in an Aust...

David Osborn: Covid airborne transmission alliance (CATA), PPE, RIDDOR and the covid inquiry

21 May 2023

Contributed by Lukas

Send a textOn this episode I am fortunate to have a guest; David Osborn is a health and safety consultant. David specialist area is hazardous substanc...

Oonagh Cousins; former professional athlete of the British rowing team on life with Long Covid

14 May 2023

Contributed by Lukas

Send a textIt is a privilege to have a  guest join me on the podcast; Oonagh Cousins is a professional athlete living with Long Covid. Oonagh made th...

Cognitive dysfunction or brain fog? and is this mistaken for mental ill health?

07 May 2023

Contributed by Lukas

Send a textOn this episode of the podcast I discuss the term "brain fog" and if this is appropriate when talking about neurological impairme...

Losing my NHS Job!

30 Apr 2023

Contributed by Lukas

Send a textThis episode of the podcast was difficult to record. I worked so hard to achieve my nursing qualification with the aim to work and look aft...

Guest Harry Leeming; the Visible App, long covid, chronic conditions and much more

23 Apr 2023

Contributed by Lukas

Send a textOn this episode of the podcast, I had the pleasure of talking with the founder and CEO of The Visible App, Harry Leeming. If you haven’t ...

Guest Respiratory Consultant Dr Asad Khan talks about Long Covid, treatments and his personal journey

16 Apr 2023

Contributed by Lukas

Send a textIn this episode of the podcast I had the honour of speaking with Dr Asad Khan. Dr Khan talks openly about his own experience of Long Covid,...

Seeing light in the darkness

09 Apr 2023

Contributed by Lukas

Send a textOn this episode I talk about how I try and see light in the darkest of times. It is often a lonely and scary place to be when we are going ...

Guest Emily Bland; Clinical Physiologist and fatigue specialist

02 Apr 2023

Contributed by Lukas

Send a textIn today's episode of the podcast I am lucky to have a brilliant guest; Emily Bland is a clinical physiologist and POTS and Fatigue Sp...

Coping with crashes

26 Mar 2023

Contributed by Lukas

Send a textThis episode of the podcast follows on from the last where I talked about Post exertional malaise (PEM), I talk on the subject of crashes. ...

Post exertional malaise (PEM)/ Post exertional symptom exacerbation (PESE) Why is it so confusing?

19 Mar 2023

Contributed by Lukas

Send a textThis episode considers PEM/PESE why is it so difficult to understand, manage and avoid? I discuss what PEM/PESE is and how is triggered and...

How are you?

12 Mar 2023

Contributed by Lukas

Send a textOn this episode of the podcast I am talking about a very simple question, most people ask most days "how are you?" Such a simple ...

Planning and preparing to return to work

05 Mar 2023

Contributed by Lukas

Send a textIn this episode of the podcast I thought it would be useful to discuss planning and preparing for a return to work. I wanted to share my li...

Long Covid Advocate Emma Benyon, shares her journey, symptoms, gaslighting and living life with Long Covid

26 Feb 2023

Contributed by Lukas

Send a textI have another inspirational guest on the podcast today. Emma is a nurse who has Long Covid with multiple organ damage. Emma lost her NHS j...

In sickness and in health

19 Feb 2023

Contributed by Lukas

Send a textIn this episode of the podcast I talk about relationships "in sickness and in health". I discuss how chronic illness/disability c...

Podcast guest and fellow nurse Kerry on advocacy, symptoms and living with Long Covid

12 Feb 2023

Contributed by Lukas

Send a textOn this episode I have a guest, Kerry is a fellow nurse and advocate for Long Covid. A founding and current member of LCNMUK (Long Covid, N...

Guest Heidi Baseler neuroscientist talks about the brain, micro-clots, research and Long Covid

05 Feb 2023

Contributed by Lukas

Send a textIn this episode I talk with Heidi Baseler neuroscientist at the university of York in the Hull York medical school. We talk about the brain...

Special episode: Ahead of tonights Panorama programme: Forgotten Heroes of the covid frontline, I talk with Rachel who features in the show

30 Jan 2023

Contributed by Lukas

Send a textThis is an extra podcast ahead of the Panorama podcast this evening 'Forgotten Heroes of the Covid Front Line. I am lucky to have a sp...

Long Covid; hormones, peri-menopause, menopause, POTS, What is what??

29 Jan 2023

Contributed by Lukas

Send a textIn this episode I talk about symptom overlap with other conditions. What is what? this can be so confusing and cause symptoms to not be inv...

The Journey so far!

22 Jan 2023

Contributed by Lukas

Send a textThis is episode 50! I can't quite believe it, however it has inspired me to record this episode "The journey so far!" I nev...

Getting to know me!

15 Jan 2023

Contributed by Lukas

Send a textI never thought I would need to get to know myself, or a new version of me due to the impact of a long term condition. In this episode I t...

My return to work part two - increasing my hours!

08 Jan 2023

Contributed by Lukas

Send a textThis episode is part two of my return to work journey. We have had the Christmas break and I took some annual leave. I was on week 6 of my ...

Chiara Berardelli - singer song writer and former GP, talks about life living with Long Covid

01 Jan 2023

Contributed by Lukas

Send a textHappy new year, I wish all of my listeners a happy, peaceful and brighter new year. In today's episode I am talking with Chiara Berard...

Have yourself a merry little Christmas

25 Dec 2022

Contributed by Lukas

Send a textI know this episode will go out on Christmas Day, I had thought about leaving the podcast for a week or so, as I put it out on a Sunday how...

Communication- I have a voice!

18 Dec 2022

Contributed by Lukas

Send a textOn this episode I talk about communication, the importance of having a voice and how Long Covid may impact on our communication. I discuss...

Dr Wes Ely- Long Covid validation

11 Dec 2022

Contributed by Lukas

Send a textOn this episode of the podcast I am honoured to have a guest, Dr Wes Ely MD, MPH.Dr Ely is an internist, pulmonologist and critical care ph...

My return to work and the planning phase

04 Dec 2022

Contributed by Lukas

Send a textIf you follow me on social media you may be aware I have started a slow phased return to work. I want to share this journey with you, the h...

Fatigued to fantastic with Dr Jacob Teitelbaum

27 Nov 2022

Contributed by Lukas

Send a textIn today's episode I  am honoured to have a guest; Dr Jacob Teitelbaum MD talking with me about his own journey with post viral ME, a...

Suicide and my son - special guest Alexander Taylor

20 Nov 2022

Contributed by Lukas

Send a textIn recent months I have been contacted by many people feeling very low and even experiencing  suicidal thoughts. I felt compelled to ackno...

Update from my first ever podcast guest, and fellow long hauler, Ian

13 Nov 2022

Contributed by Lukas

Send a textToday is episode 40 of the podcast, I can't quite believe that I have recorded 40 episodes, had some excellent guests join me; and mos...

UWS Pacing trials with Nilihan Sanal Hayes

06 Nov 2022

Contributed by Lukas

Send a textIn this episode I am fortunate to have Nilihan join me to talk about a pacing trial that is underway. Nilihan has a vast knowledge and expe...

Symptoms and the seasons

30 Oct 2022

Contributed by Lukas

Send a textIn this episode I talk about how the changes of the season may effect symptoms of Long Covid and other long term conditions. This can be im...

Hope, Long Covid research, Long Covid kids and more with Dr Binita Kane

23 Oct 2022

Contributed by Lukas

Send a textIn today's episode I am extremely lucky to have another fantastic guest; Dr Binita Kane. Dr Kane is a consultant respiratory physician...

I am not Long Covid!

16 Oct 2022

Contributed by Lukas

Send a textThis episode of the podcast comes from the heart. I wanted to talk about how becoming unwell has taken my sense of purpose, almost my full ...

Life has to be more than work!

09 Oct 2022

Contributed by Lukas

Send a textIn this podcast episode I talk about returning to work, and how life needs to be much more than a process of work, rest, recover, repeat. I...

Holiday challenges and wins with long term conditions

02 Oct 2022

Contributed by Lukas

Send a textI have recently been on holiday, this is usually a time of excitement, looking forward to family time, exploring new places, eating delicio...

Travel tips for chronic illness & disability- with guest Cass

25 Sep 2022

Contributed by Lukas

Send a textIn todays episode I talk with returning guest Cass. I have recently been away and prior to going I had so many fears and reservations, lear...

Looks can be deceiving!

18 Sep 2022

Contributed by Lukas

Send a textOn todays episode I discuss how the way you look does not often reflect how you feel. I talk about invisible illness and chronic conditions...

The self that was, and the self that is! with Dr Anna Robson

11 Sep 2022

Contributed by Lukas

Send a textOn todays episode I discuss the self that was and the self that is, with my guest Dr Anna Robson. Anna is an emergency medicine trainee and...

Guilty if I do, and guilty if I don't!

04 Sep 2022

Contributed by Lukas

Send a textIn todays episode I discuss the issue of guilt. Living with a long term condition has evoked this feeling in so many areas of my life and I...

Fatigue Vs Tired

28 Aug 2022

Contributed by Lukas

Send a textFatigue is often mistaken for being tired, needing to sleep or rest. I discuss the misconception on this episode and talk around the differ...

Disability is not a dirty word!

21 Aug 2022

Contributed by Lukas

Send a textI have a guest on today's podcast, Cass is a fellow nurse and lives with Long Covid, they contracted covid in April 2020. They had pri...

Can Long Covid go into remission? What about ME/CFS?

07 Aug 2022

Contributed by Lukas

Send a textOn this episode I explore the possibility of remission with Long Covid, and try to understand how the crash and relapse cycle works. Are be...

A day in the life! the Long Covid journey

21 Jul 2022

Contributed by Lukas

Send a textThis episode of the podcast explores what a day on the life living with Long Covid can look like, this was more challenging to put into wor...

What is the difference between symptom management and treatment?

21 Jul 2022

Contributed by Lukas

Send a textThis episode explores the difference between Treatment and symptom management. How important are they? and is one more important than the o...

The experience of a fellow long hauler, and my first podcast guest

05 Jul 2022

Contributed by Lukas

Send a textI am so excited to have my first ever guest on the podcast. Ian is a fellow long hauler and co creator of the 4th P, he is also an avid lis...

What is POTS?

05 Jul 2022

Contributed by Lukas

Send a textOn this weeks podcast I am talking about POTS (Postural orthostatic tachycardia syndrome), this is something as a nurse I have not come acr...

Long term illness and toxic positivity

22 Jun 2022

Contributed by Lukas

Send a textWhat is toxic positivity? In todays episode I discuss I discuss the difference between positivity and toxic positivity. I explore how toxic...

The Long Covid emotional rollercoaster

22 Jun 2022

Contributed by Lukas

Send a textThis episode discusses the emotional rollercoaster that is experienced when living with Long Covid. I reflect upon my emotions and how I ha...

The true importance of self care; its much more then a facial

21 Jun 2022

Contributed by Lukas

Send a textThis episode discusses what self care is, and why it is important to implement self care into your daily life. I discuss the guilt around t...

The trials and tribulations of going out!

08 Jun 2022

Contributed by Lukas

Send a textLife has changed in many ways for everyone due to the pandemic, and for sometime lockdown prevented any of us from going out. As the world ...

No sleep or too much sleep

08 Jun 2022

Contributed by Lukas

Send a textOne of the challenges I have had since having Long Covid is sleep. I can either sleep for way too many hours or I have total insomnia or mi...

What made Twitter angry? "its all in your head" take 2

27 May 2022

Contributed by Lukas

Send a textOn this episode I am going to tell you about how a Tweet I put out, highlighted how much misconception there still is about Long Covid. I h...

Does Anti-inflammatory make a difference

27 May 2022

Contributed by Lukas

Send a textIn this episode I talk about anti-inflammatory foods and drinks how these may support the inflammatory response from Long Covid. I discuss ...

Can I still do my job?

17 May 2022

Contributed by Lukas

Send a textIn todays episode I discuss a current hot topic; Long Covid and returning to work. I explain how I returned to work, the challenges, my jou...

Reducing Sugar...but I love cake

12 May 2022

Contributed by Lukas

Send a textIn this episode I talk about a change I made to my diet and why, I am sure you have guessed by the title, this was reducing sugar. I discus...

"Its all in your head"

05 May 2022

Contributed by Lukas

Send a textIn this episode of the podcast I wanted to talk about mental health/illness and Long Covid. Unfortunately many of us have heard the term &q...

The 4th P and Me

30 Apr 2022

Contributed by Lukas

Send a textIn this episode I am talking a little more about the 3Ps Plan, Prioritise and Pace, and how implementing them into daily life can prevent c...

To exercise or not, that is the question?

20 Apr 2022

Contributed by Lukas

Send a textIn today's episode I talk about exercise, how the current guidance for exercise and Long Covid can cause conflicting advice. Exercise...

Unable to protect my family

12 Apr 2022

Contributed by Lukas

Send a textIn today's podcast, which is episode 10, I can't quite believe the podcast is going into double figures already. I am talking abo...

What would you like to drink?

05 Apr 2022

Contributed by Lukas

Send a textIn this episode I discuss alcohol, how this has effected me since having Long Covid. I talk about  the physical impact alcohol has had and...

How do you Pace?

15 Mar 2022

Contributed by Lukas

Send a textIn this episode I am going to talk about the 3 Ps and how I intend to implement pacing into my life. I discuss how powering through is my g...