Long COVID Real Talk Podcast
Episodes
Season 2, Episode 14: Wooblin’ Along
19 Jul 2024
Contributed by Lukas
A glimmer/silver lining of Long Covid — I found a new hobby! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Em...
Season 2, Episode 13: Moving & Hostess Stress
16 Jul 2024
Contributed by Lukas
Universal stressors/stress around moving while also hosting out-of-town visitors. Long Covid Real Talk Facebook group: https://www.facebook.com/groups...
Season 2, Episode 12: Moving Day
12 Jul 2024
Contributed by Lukas
Our momentous attempts to decrease our monthly expenses and create a more relaxed life. Long Covid Real Talk Facebook group: https://www.facebook.com/...
Season 2, Episode 11: Languishing Buddies
09 Jul 2024
Contributed by Lukas
Thanks for listening when I’m not feeling so great. Please email me at [email protected] — I promise to write back!
Season 2, Episode 10: Role Shame
05 Jul 2024
Contributed by Lukas
How our learned roles can contribute to feelings of shame when recovering from Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.c...
Season 2, Episode 9: How to Know if you have Long Covid
02 Jul 2024
Contributed by Lukas
Discusses symptoms people with Long Covid experience and how to know if you have Long Covid. Long Covid Real Talk Facebook group: https://www.facebook...
Season 2, Episode 8: Birthday Party Aftermath
28 Jun 2024
Contributed by Lukas
The struggle of trying to fulfill social role norms while having long covid is real! Long Covid Real Talk Facebook group: https://www.facebook.com/gro...
Season 2, Episode 7: How to Fortify Your Boundaries
25 Jun 2024
Contributed by Lukas
What to do if people give you a hard time when you try to set boundaries, and how to set boundaries with particularly challenging people. Long Covid R...
Season 2, Episode 6: Retirement Update
21 Jun 2024
Contributed by Lukas
My brain isn’t working well right now, just had a meeting with law firm helping with retirement. Long Covid Real Talk Facebook group: https://www.fa...
Season 2, Episode 5: How to Set Boundaries
18 Jun 2024
Contributed by Lukas
Discussion from Nedra Glover Tawwab’s book “Set Boundaries, Find Peace” about what keeps us from setting boundaries, how to set boundaries and p...
BONUS EPISODE #3: My Chronic Fatigue Clinic Appointment
15 Jun 2024
Contributed by Lukas
Discussion of the treatment plan from my chronic fatigue clinic appointment. *My brain isn’t working great during this episode but wanted to get the...
Season 2, Episode 4: How to Tell if You Need Better Boundaries
14 Jun 2024
Contributed by Lukas
Discussion of boundaries from Nedra Glover Tawwab’s book “Set Boundaries, Find Peace” — how to know if you need better boundaries. Long Covid ...
Season 2, Episode 3: 2 Traits That Make Long Covid Worse
11 Jun 2024
Contributed by Lukas
Discussion of two traits commonly found in ADHD that make Long Covid recovery more challenging. Long Covid Real Talk Facebook group: https://www.faceb...
Season 2, Episode 2: The Vicious Cycle
07 Jun 2024
Contributed by Lukas
The vicious cycle — starting to feel better leading to yet another episode of severe PEM. Long Covid ...
BONUS EPISODE #2: My Paxlovid Study Experience
05 Jun 2024
Contributed by Lukas
I describe my experience participating in the RECOVER-VITAL study, hoping to get 15 or 25 days of Paxlovid. You can review on clinicalstudies.gov and ...
Season 2, Episode 1: The Long Hauler’s Dilemma
04 Jun 2024
Contributed by Lukas
When you start to feel better, how much is too much? How do you find a balance between action and rest to prevent an episode of Post-Exertional Malais...
Episode 25: Family and Friends Edition
24 May 2024
Contributed by Lukas
My husband, Michael, discusses what life is like from the perspective of the partner of someone with Long Covid. ...
Episode 24: Cautiously Optimistic
21 May 2024
Contributed by Lukas
Discussion of how things are going since the Paxlovid study started earlier this week. ...
Episode 23: Boundaries = Our Friends
17 May 2024
Contributed by Lukas
Discussion of a great tool to develop and utilize in our Long Covid recovery — setting better boundaries to better protect our energy, needs and wel...
BONUS EPISODE #1: KathleenSue, Karolina, and Sara’s stories
15 May 2024
Contributed by Lukas
KathleenSue’s voicemail, Karolina’s email and Sara’s text messages all telling their story, their experiences of having Long Covid. Please send ...
Episode 22: So You Had A Good Day
14 May 2024
Contributed by Lukas
Not every day is a bad day — sometimes there are good days, too! Also, sometimes music really helps! ...
Episode 21: The Search for New Digs
10 May 2024
Contributed by Lukas
Update on attempts to find a cheaper set-up for living/lower monthly bills while preparing to take a significant income cut due to disability retireme...
Episode 20: Money Problems, Part II
07 May 2024
Contributed by Lukas
Update after 4 calls to insurance company over 2 days for a total of about 2.5 hours of my life I will never get back, that has turned my brain to mus...
Episode 19: Money Problems
07 May 2024
Contributed by Lukas
Perhaps the ugliest part of Long Covid — the lack of support and awareness in our time of greatest need. ...
Episode 18: Medications I Take for Long Covid
03 May 2024
Contributed by Lukas
Disclaimer: these are the medications I am taking, recommended by my medical providers. Please do not take this as medical advice. Anything that pique...
Episode 17: How to Get into a Long Covid Study
29 Apr 2024
Contributed by Lukas
Discussed worldwide studies you can look up on clinicalstudies.gov and reach out to the investigators if there is a study going on near you. You can a...
Episode 16: Here We Go Again
25 Apr 2024
Contributed by Lukas
Hit with another crash after trying to spend just a little time on a project after getting through a several day long flare-up. Lesson learned: if you...
Episode 15: Long Covid Healing Meditation
25 Apr 2024
Contributed by Lukas
I use scripts from my uncle’s book to make a Long Covid-focused healing meditation. Long Covid Re...
Episode 14: What to do During a Flare-Up
22 Apr 2024
Contributed by Lukas
Just coming out of a nasty Post-Exertional Malaise (PEM) Episode, I made a list of all the things I usually do during a flare-up. ...
Episode 13: Post-Exertional Malaise (PEM) Flare-Up Days 1-5
19 Apr 2024
Contributed by Lukas
What is it like to have a Long Covid flare up caused by post-exertional malaise (PEM)? Day 1: Did not take temperature, severe exhaustion, fatigue, b...
Episode 12: Exercise & Long Covid
19 Apr 2024
Contributed by Lukas
Discusses how Long Covid affects our ability to exercise and how to figure out what is best for your body. Article about Long Covid & Exercise: http...
Episode 11: Long Covid Sleep Meditation
16 Apr 2024
Contributed by Lukas
Intro of what to expect followed by a guided sleep meditation to help you sleep better and more deeply. A Facebook Group has been created for further...
Episode 10: Sleep Well
12 Apr 2024
Contributed by Lukas
Discusses sleep hygiene — some things normally recommended for good sleep hygiene may not be appropriate for people with Long Covid. A Facebook Gro...
Episode 9: I miss my pre-Covid self.
08 Apr 2024
Contributed by Lukas
Processing the major life changes caused by Long Covid. Missing my pre-Covid brain, pre-Covid body and pre-Covid self. Name of podcast I referenced:...
Episode 8: Exercise, Go Outside, Feline/Canine Support
06 Apr 2024
Contributed by Lukas
Discussion of types of exercises you can do, making sure you get your Vitamin D and get outside, and how pets can be a phenomenal support. ...
Episode 7: How To Make A Flare-Up Protocol
30 Mar 2024
Contributed by Lukas
Goes through things you can plan and ahead of time, so during your next flare-up you don’t have to think so much — you can just rest. A Facebook G...
Episode 6: Pacing - Why It’s So Hard For Some People
29 Mar 2024
Contributed by Lukas
Stop. Rest. Pace. And why some people really struggle with pacing more than others. I want to hear from you! A Facebook Group has been created for fur...
Episode 5: Mantras & Combating Negative Self-Talk
22 Mar 2024
Contributed by Lukas
How to keep your mental health on point when you are not feeling well so it does not worsen your symptoms and/or delay your recovery. A Facebook Group...
Episode 4: Why You Are Grieving So Hard
22 Mar 2024
Contributed by Lukas
Discusses grief people with Long Covid have to process, that their grief is disenfranchised grief, and why that makes grieving the loss of their previ...
Episode 3: When You Feel Alone
20 Mar 2024
Contributed by Lukas
How to Grow Your Support Network. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click he...
Episode 2: It Is NOT All In Your Head!
20 Mar 2024
Contributed by Lukas
Discusses ways to support your mental health while recovering from Long Covid. A Facebook Group has been created for further fellowship! Please searc...
Episode 1: Is There Anyone Else Out There?
20 Mar 2024
Contributed by Lukas
Medical provider with Long Covid seeking a platform to discuss the emotional aspect of having Long Covid. Understanding and processing our experiences...